Abby has a new-to-her toy! Our therapist suggested that she might be ready for a Johnny Jump-Up. It would be really good for strengthening her leg muscles and working on bouncing and standing. One problem: we don't have any doorframes on the main floor of our house except going to the basement, and I'm not really all about hanging my baby precariously over a flight of stairs. My sister has a Jumparoo, which is basically the same thing on a stationary saucer, so we borrowed it. Abby loves it! Check her out!!
If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...
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