OFF WHILE AWAKE!!!!!!!!!!!!
Abby is officially off of the vent whenever she is awake and only needs it while she is sleeping. We go to the pulminologist next week, where she will decide if Abby is ready for a sleep study. This is when Abby will spend the night in the hospital hooked up to a bunch of machines that will monitor her breathing patterns and let us know if she is having any apnea. If she's not, we will hopefully get the go-ahead to start weaning her sleeping hours too! (We'll start with naps and work our way up.)
This is sooooo exciting for us and we are really enjoying the freedom without the vent. When Abby gets her helmet off for good, she will really be "low profile!" (People don't seem to notice the trach nearly as much as the helmet, which is funny since the helmet is the much lesser issue.) We haven't gotten brave enough to go anywhere without having the vent in the car yet, but it's nice not to have to bring it into the restaurant or onto the boardwalk.
We are loving the summer and especially the cooler weather we've been having the last few days. I'm kind of dreading the winter when cold and flu season is in full force and we have to be super-careful about germs again. (Well, we still are, but even more so!) Until then, I'll just enjoy the nice weather while we've got it!