Wednesday, February 29, 2012

Show Me Your Blue!

I would love to have some photos of people wearing their blue to show their support for Rare Disease Day!  If you're willing to play along, take a picture of yourself and email it to me:  I'll post the pictures on here as a special "Hope...It's in Our Genes!" post!  Thanks! :)

Rare Disease Day!

Today is Rare Disease Day.

Nope, it's not a coincidence that it's on February 29th!

As the mom to an adorable little girl with a pretty darn rare disease, I can tell you that it is ridiculously hard to deal with at times.

You're constantly educating doctors and breaking down the walls around those doctors who don't want to admit they've never heard of the blah-blah-blah syndrome you just spouted off.  Repeated internet searches are in vain because there's never anymore information.  There's no expert...oh wait, that's you!  You, the mom, are the expert.  Nobody can tell you what to expect at each stage because no two cases are alike and your child is pretty much one-of-a-kind because she doesn't have a primary diagnosis to cause this crazy-rare disease.

But then, it can also be pretty cool to know that God has entrusted you with such a wonderfully special little girl.  He knew that it would be tough and that there would be a lot of challenges to overcome, but He also knew that this gift would forever change your life and the way you think about everything.

So, Happy Rare Disease Day to you!  If you can, take a minute to thank God for giving Abby such a rare disease that has opened our eyes to a whole new world.

Tuesday, February 28, 2012

I Love Google Images!

There are sooooo many images related to Choosing Joy!  These are some of my favorites...

I want to make this one...or buy it from someone who did!  :)

I thought this one was pretty clever.  It was the poster for a sermon series.

I really hope this says "Choose Joy" and that I'm not actually saying something offensive in French.  If it says "Choose Joy," then I think it's beautiful.  If it is vulgar, then I'm sorry...I only speak German!

I thought this one was cute!

Monday, February 27, 2012

Show Your Support For Rare Disease Day

Rare Disease Day is this Wednesday, February 29th.  I want to invite all of you to wear jeans/denim/blue on Wednesday in honor of Abby and all of the others living with a rare disease.

It can be extremely isolating when you are a family dealing with a rare disease.  As much as people want to understand, they just can't.  Starting Rare Love has allowed me to connect with others who share similar feelings, but battle different diseases.  Likewise, participating in events like Rare Disease Day helps to raise awareness and feel just a little less isolated.

Watch this short video about Rare Disease Day and please consider joining me on Wednesday!  :)

PS:  It's considered a "rare" disease if it affects less than 1 in 2000 people.  That really puts into perspective just how rare CCMS is...I don't think they can even say "1 in ____."  1 in 1 billion?  All I know is that it is extra rare, and we are extra thankful for her life!

Sunday, February 26, 2012

Baby Laughs

They're my favorite!  :)

PS:  The turquoise thing is her Passey Muir Valve, which is why you can hear her so well. 

Saturday, February 25, 2012

Define Joy

I didn't write this post, but I wish I did!  It was written by a brave young woman named Sara who battled disease for a long time and passed away in September.  Her writing spoke to me so much, and I hope it touches you as well.


Joy is a big part of life... no matter how you define it or what brings it to you. I'm sure there are as many things that instill joy in people as there are people to describe it.
Maybe for you it's the smile on your child's face in the early morning hours when you walk in the room to lift them from their crib.
Maybe it's walking along the beach as the waves crash on the shore and seagulls make a choir in the distance.
Maybe it's pulling into a gas station where the price is below $3/gallon.
To each their own.
But here's a question: have you stopped long enough to figure out what brings you joy, define what that joy feels like to you and realize that, like everything in life, it can be a choice?
I made a decision a long time ago that I was going to choose joy. I even painted a big rectangle on my wall and printed it in big letters so I wouldn't forget to make that choice every day. The major word in that rectangle isn't joy... it's CHOOSE. It's looking around me when life is difficult and trading every complaint I have for something beautiful in my life that far outweighs it. I know, it's that Pollyanna personified thing again... but living joyful beats being cynical any day of the week.
My friend Tam asks a lot of questions, both on her blog and in her emails... she peppers me with questions that nearly always make me stop to think before firing off a simple answer. I like that challenge. On her blog awhile back she posed the question: how would you define joy?
She didn't ask what brings you joy... she asked for it's definition. And I had to think about it for a bit. I tried to think of what REAL joy feels like to me... not the fleeting moments of happiness or elation, but that real, deep down, nothing can touch the lightness of my soul kind of joy. Here's what I decided for myself:
Joy: the unwavering trust that God knows what He’s doing and has blessed me with the opportunity to be a part of it… not despite what’s happening in my life but because of it. When everything earthly feels heavy He gives me an internal lightness that can’t be touched.
That's what it feels like and means to me. Take a minute today to think about what joy is for you and then take it one step further. Take a moment to leave yourself a note... on your nightstand, on your bathroom mirror, by your computer... leave yourself a reminder to stop, take a deep breath and consciously choose joy today.
Trust me, it's worth your time.

Friday, February 24, 2012

Love Your kids as if They Were Dying

I am reposting this from, which is a phenomental source of support if you have a special needs child.  Ellen at loves it too, so she often links their posts and I eagerly hop over to read them when I have a second.  They never disappoint.

This was written by a mom named Suzanne who has 2 children with a mitochondrial disease.  I usually just link to good posts I want people to read, but this was worth an actual re-post.  It was a good reminder to me.  Sometimes I am so worried about making the most of my time with Abby that I forget that Caleb is growing older by the minute too!  He deserves my attention and adoration as well, and it's something I have to create time to do sometimes.  Life with Abby is very busy, and I sometimes worry about Caleb's needs getting pushed to the side.  Matt and I work hard at giving him individual attention.  They have "Man Time" every week going to the dump, where they listen to sports talk radio and do "Man Stuff" that I am not allowed to know about.  When our day nurse is here, I try to spend some time playing with just Caleb, or stopping to get ice cream or another treat on the way home from school once in a while.  But it isn't easy.

READ this post and take the message to heart!

My day had started like any other, I was up at 5 packing lunches and backpacks, while trying to gulp down some coffee. I had an appointment at the office later, so I spent a few minutes standing in front of my closet perplexed and sighing. I looked in the mirror, briefly noting the major damage 40 plus years and nightly interrupted sleep can bring. Finally, by 7 am, we were all dressed and ready, so we hit the road to drop Zoe’s big sister O, at her school first.

Later, it was just Zoe and I in the car. The sun was streaming through the car windows, the radio was on and I was trying to make Zoe laugh.. we were singing to the music and making small talk about her day.

I am used to the starts and stops in our frequent conversation. Zoe, almost 10 now, is a thinker- yet she slowly forms her thoughts, chooses her words and processes it into speech. There are pauses as she searches for the word she wants, and fatigue can slow the pace, slur the word . Remembering all the years she could barely even communicate, I wait patiently and am still grateful each time she begins to speak.

Her thoughts come in word pieces and listening carefully, I fit the puzzle together ..

“ Mom, when I grow up and become a Mom, would this be a good car for me to drive and how do you learn to be a Mom anyway?” There it is, her question. And suddenly it’s as if the clouds have pushed the sun away, and my daily “ cup half full” approach to life has been smashed to hell. Zoe can’t see my face, and I am glad. I don’t want her to know the raw pain that is causing me to to hold my breath .

My girl is growing up, and thoughts of the future, are naturally close ,more menacing than when she was 3 or 5, and although she is an awesome kid doing amazingly well- she still has a progressive metabolic disease. She still has generalized epilepsy, kidney disease and although she grows more steady with the growing size of her body- she uses a wheelchair and a walker to discover and experience her world.

What I couldn’t say to Zoe is that with her vulnerabilities I can’t imagine her “ being a mom”- that her physical impairments alone ,will prevent her from ever driving a car. I refuse to even contemplate the complex medical conversations we have had about Zoe’s life expectancy, we just don’t go there.

Yet this reality is what sometimes separates me from other Mom’s. Tragedies that take kids too soon are always unexpected. As busy Mom’s we just forget that we are all fragile. We sometmes forget that the messy room, the lapse in homework , the bad grade -aren’t the important things about mothering.

In the last few months, my local community of special needs families have lost two girls, and this loss hits close to home. These girls were very close to Zoe’s age, with some similar issues. These families were fighting, and winning. Their kids survived surgeries, hospitalizations, and the everyday challenges that often come with raising a special needs kid. These parents were managing their kids health, their kids were stable, even improving with therapies. Their parents were seeking refuge in that stability that meant success-until the day their kids weren’t stable. Until one day their physical vulnerabilities were cause for taking their child’s life, and they were just gone.

I am guilty of doing it too sometimes. Getting caught up in the day to day. Zoe is doing well, we are managing, we are “winning” and then an illness comes along, a medical test, or a conversation like this one Zoe and I shared – and reality comes crashing through, grounding me again to what is really important.

And it’s this reality , that I wish every mom knew. It sounds harsh, I know.. – but it’s a secret that special needs moms have learned along the way. It’s something that I think all moms should know, or just think about sometime. That all that other stuff- just really doesn’t matter.

Let your KIDS be that sunshine that lights your soul and commit to really love your kids, love like they are the MOST important, love with the heartbreaking pain that comes with it. LOVE your kids, as if they were dying.

Thursday, February 23, 2012

Playing Games

 Where's Abby????


Wednesday, February 22, 2012

Junior Carpenter

What do you do with a couple of screws,

a bunch of nails,

a sturdy rock (painted during a previous craft time),

and a cardboard box?

Carpentry 101!  This great idea was found in my new Family Fun Magazine, and I knew that Caleb would love it.

I was right!

An hour's entertainment...thanks, Family Fun!

Tuesday, February 21, 2012

Things I Didn't Think I'd be Doing

If you'd told me last year some of the things I'd be doing in February of 2012, I'd just laugh at you...or cry and shake my head!  I was so completely overwhelmed with the craziness of everything that I couldn't even imagine what things would look like a year later. 

This was evident as we reevaluated Abby's IFSP (Individualized Family Services Plan) for her therapy services!  Some of our goals a year ago were for Abby to have head and neck control, to sign one word, and to take one bite of solid food.  My, my, how things have changed!  The girl who couldn't hold her head up for even a second a year ago is now crawling up the stairs and walking with a push walker.  The girl whose thoughts were locked inside her head a year ago are now exploding through her fingers.  The girl who refused to even let a spoon pass through her lips a year ago now willingly tastes just about anything you give her--and likes it! 

Things I didn't think I'd be doing...

...chasing a 15 month old out of the cabinets...and the toilet...and the refridgerator...and the cabinets again...and the trash can...

...telling Abby to stop whacking her brother on his head

...breaking up fights between siblings

...changing trach ties by myself on a regular basis (while on the phone and breaking up fights between siblings!)

...watching Anna and Abby race around the house with their respective walkers

...having to protect my bowl of chocolate ice cream from Abby's sweet tooth
...walking with my girl holding only one hand down our driveway

...teaching Abby a new sign almost every day

...talking about "least restrictive environments" and preschool options

...discussing and planning for weaning Abby off of the vent for good this summer

Here's to another year of things I didn't think I'd be doing!!  :)

Monday, February 20, 2012

Giveaway Winner!!

Congratulations to Sarah C. for winning the Lock and Lock giveaway!  She was #22, which was the "Magic Number!"

Thanks to everybody who entered.  We had about 30 entries and some really great song submissions.  You all have good taste.  :)

What He Would Say

On Friday night, we went to the mall to return some shoes and get a few things.  While eating at the food court, we had our first experience with kids making fun of Abby.  A few boys were laughing and pointing at their throats, making faces.  They were silly middle school boys and I was the only one who noticed it, so it wasn't a big deal and I didn't say anything at the time.  I did mention it when we were in the car on the way home, though.  Here's the rest of the conversation.

Caleb:  Ohhhhh, I wish I had seen them!

Me (a little afraid of what he might have done): Oh yeah?  Why?

Caleb:  Well, I would have marched right up to them and very calmly said, 'Don't you know you're looking at a miracle?!'

Ahhh, I love that kid!  I'm so proud of the way he loves his sister.  I don't doubt that he will say that statement to more than a few kids.  My boy, changing the punk kid at a time!

Sunday, February 19, 2012

The Little Yellow Helicopter

I ran some errands on Friday after I got off of work because I had a little time before I had to pick Caleb up from  MMO.  We needed some things at the grocery store and I had to pick up four more of the never-ending prescriptions from two different pharmacies.  (Why, yes, it is that complicated!)

While I was driving, I saw a little yellow helicopter lift off from the hospital, rise above into the sky above me, and take off toward Baltimore.

My little yellow helicopter.

Just like that, a flood of emotions came pouring back into my head.  I remembered that night so vividly:  the painful contractions that wouldn't stop, despite the heavy medications; the roar of the helicopter engine as it sputtered to life; the naive, excited squeals of a three year old boy who had no idea how much his life was about to change; the fear that gripped me during that 20 minute ride that seemed to take 20 hours; the calmness of the very capable flight nurse; the song "I Have a Maker" that I sang in my head over and over again to help sooth my nerves.

I prayed for the person in that helicopter, because I knew how emotional that flight would be.  I prayed for the family, because I've also been "the mom" in the helicopter.  There is nothing more terrifying than the helplessness you feel watching your child struggle to breathe.

I don't think I will ever be able to see a medical helicopter in the sky and have it not be an emotional experience, but seeing that little yellow helicopter brought back a whole lot of memories.

Memories that seem very distant as I sit here in a pretty purple room watching my 15 month old daughter sleep peacefully.

Guest Blog

Check out Carter's Hope (there's a button on the top right of the blog that links right to it!) to read about a beautiful little boy named Carter who left the world way too soon.  His mom contacted me about posting a Story of Hope to encourage other families facing a special needs situation, and I happily agreed!  You can read what I wrote here

This organization is just starting out, but I think that it will be an awesome encouragement to those families who are just starting out on this journey.

Saturday, February 18, 2012

What Do You Do When Daddy is Gone All Day and All Night?

Have an indoor snowball fight with washcloths, of course!!

Hey, whatever gets me through the day...

Friday, February 17, 2012

Read and Watched


I just recently finished a great book called that was absolutely amazing. 

No spoiler alerts here, but it's about a former Olympic runner who was captured by the Japanese in WWII and became a POW.  While it is terribly difficult to read at some parts, the theme of unwavering hope and courage is prevalent throughout the novel.  He truly never gave up. 

This book isn't a #1 best seller for nothing!  It is definitely worth the read.  I flew through its nearly 500 pages in a week...and I don't have a lot of time to read!! 


Caleb earned a movie night by earning all of his magnets for three days on his daily chart, so we finally rented Mr. Popper's Penguins.  

 He had read the book with Matt (one of Matt's favorites as a kid) and had really been looking forward to the movie version.  Warning:  it is nothing like the book!!!

That's not a bad thing, but something you should know up front.  The similarities end with the names of the dad and the kids...and the fact that there are penguins.  It is a really cute movie with really nothing questionable, although it is rated PG.  We felt very comfortable with Caleb watching it and never gave each other the uh-oh-maybe-this-was-a-bad-idea glances over his head!  Caleb loved it and had quite a few laught-out-loud moments!  It's a great family movie.

Thursday, February 16, 2012

Vote for Caleb and Abby!

I have entered a photo contest sponsored by MOPs (Mothers of Preschoolers).  I included 3 different photos of Caleb and Abby, so please vote for can vote up to 5 times a day!  Thanks!  :)


Emily is a 17 year old who has been such an inspiration to me in the last two weeks or so that I have had the pleasure of knowing her!  You see, Emily has know, Cerebrocostomandibular Syndrome.

And she is 17!!!

I have really enjoyed getting to know her story and emailing her mom.  With Emily's permission, I wanted to share the blog she just started about her journey with CCMS.  I hope that you will check it out and give her some blog love!!  She is a lovely girl, and I hope that we will be able to meet face-to-face one day.  Until then, I will happily read her blog with tears in my eyes.  :)

Wednesday, February 15, 2012


Little Mozart has discovered the piano!

This girl LOVES music.  She dances and claps to any kind of music, and really enjoys the piano.  Her favorite song is "Little Red Wagon" by Raffi.  She starts bumping up and down as soon as you start singing it!

As a fun giveaway to celebrate 200,000 hits, I want to hear about your favorite songs!  Simply leave a comment here, on Facebook, or through email sharing your favorite song, the name of the writer/band, and a short little statement about why you love it!  You can enter up to 3 songs!  Just post each entry separately, because I'll be numbering all of the entries and having Caleb choose a number.  Multiple songs in one comment will only be counted as one entry.

As a bonus, you get an extra entry if you link this giveaway to your own blog or Facebook page!  Just write in a comment that you did so.  (You can get an extra entry for each one if you put it on your blog and FB page!)  :)

All entries must be in by Sunday night at 7 p.m.  Caleb will choose a random number at that time, and I'll post the winner later that night! 

The winner will receive several exciting Lock and Lock gifts, including a set of Hello Bebe food dishes, a set of EZ Lock round containers, a set of EZ Lock rectangular containers, and a cosmetic case. *  Woo hoo!!  :)

**  Please note that I am a Lock & Lock supporter and get these gifts as a thank you for blogging about the products. 

I can't wait to hear some of your favorite songs!!

Need a Little Inspiration?

I love this picture.  Look carefully at the wall!  This is the photo I use for the Rare Love icon on Facebook.

I'm a big fan of this one too.  :)

And some days, this is my mantra!

Tuesday, February 14, 2012

Conversation Hearts for Special Needs Parents

I thought these were pretty funny...beware a tiny bit of language! 


We've hit 200,000!  You know what that means????  Another giveaway!  Stay tuned for details!

We actually hit 200,000 last night, I think.  I'm not sure.  I was much too busy holding down a screaming, thrashing little boy so that Matt could get the blasted eye drops in while Abby smacked poor, defenseless Caleb on the head to notice the exact time.  I can't wait until we're done with these drops.  Come on, Wednesday night!!

Stop the Word

The "R-Word" (used to describe people with intellectual disabilities) is very offensive to me.  Way before I was blessed to have Abby in my life, I hated the word.  And I've said that before.

I came across this blog post, which is one of many I have enjoyed from Love That Max.  Ellen's writing is real and from the heart.  She also has a whole lot of courage to do the Twitter experiment she did!  I am too worried about getting people mad at me, but she showed a lot of guts!

If you're an "R-Word" user, it would be an awesome Valentine's Day gift to the millions of children and adults with intellectual disabilities (and those who don't, but people assume they do because they're in a wheelchair, on a ventilator, etc.) if you'd consider a different word. 

From a mom who hopes the term is never aimed at her daughter.

Monday, February 13, 2012

Does Blogging Creep You Out?

If you look on the right side of the blog, you'll see little icons with pictures of some of the people who follow my blog....or at least the ones who linked up using Google Friend Connect!  Of those 71 people who are currently following, I don't know over half of them. 

We're about to approach 200,000 hits...before I went into the hospital with Abby, I had a little over 5,000 hits total in almost 4 years.  I now get about 1,000 hits a day, and I know they're not all from my mother!  ;)

Does that freak me out?


I'm not naive.  I know that putting our life out on the internet has dangers.  I try to be very careful not to give anything more than our general Maryland location and do a lot of initials for places we go.  I don't link to local places and only include the names of friends' kids with their permission--especially now that more than 6 people read it on a regular basis!

But the reason that I choose not to worry about the dangers of the internet is because it is so utterly clear to me that God is using my blog to reach people.  I love connecting with others and it puts a smile on my face when I get an email thanking me for encouraging them.  It is reassuring to know that God has a reason for putting us in this place and is using our challenges for good.

No, nobody commented about me putting my life out there for all to read, or that public blogging is dangerous. If they're thinking it, they're not saying it! :) It's just been something I've been pondering recently, and I actually think it's kind of funny that a worrier like me is not worried about this!

So while I am aware of the dangers and could certainly make my blog private for-my-eyes-only, I prefer to allow God to lead this blog in the direction He chooses.  After seeing where He has taken it in the last year (I certainly never thought I would be guest blogging on other special needs blogs, that's for sure!!), I know that He will continue to lead me.  I'll save my worries for other germs!!! :)

Sunday, February 12, 2012


Caleb is going to help me make chocolate pudding (for his writing practice!).  He comes into the kitchen with his goggles on.  When I ask why he's wearing them, he replies quite seriously, "Well, you never know when something might fly up and hit you in the eye.  Safety first, Momma.  Safety first."

Caleb:  (When Abby throws a toy at him because he won't let her play with the one she wants):  Don't throw things in anger, Abby!  (voice of experience)

Caleb: (in a sing-song voice to Abby):  Well, good morning, cutest little baby in the world!


Me:  Okay, Caleb, what do you want your next reward to be for getting all of your magnets for 3 days on your daily chart?

Caleb:  Hmm...I know!!!!  A trip to Disney World!!!!!!  (his last reward was a movie night at home...)

Saturday, February 11, 2012

Random Thoughts

*  The eye drops used for Pink Eye are pure torture for both the parents and the child!  If that isn't motivation for constant handwashing, I don't know what is.  I was positive I was going to get a visit from Child Services tonight based on the screaming I am sure the neighbors could hear coming from my house.

*  I'm getting close to 200,000 hits!  I'll do another giveaway when I do... :)

*  We're going to the Melting Pot tomorrow for an early Valentine's Day dinner.  Can you say food coma?!  It takes a crazy amount of planning to get to go out by ourselves (and we had to change the date once!), so this is very exciting! 

*  I passed my English as a Second Language Praxis exam, which means I am now certified.  Huge sigh of relief!!

*  Whitney Houston died today.  She had issues, but she was one heck of a singer!

*  Matt was gone all day and all night today. Usually when this occurs, I try to plan a play date or have something to break up the day, since I'm homebound.  That didn't happen today, so it was Operation How-Many-Creative-Activities-Can-I-Plan-in-One-Day!  We built a space ship out of cardboard boxes (thank goodness we got a supply delivery yesterday!), had an indoor snowball fight, made Valentines, dug in the bean bin, and played with lots of Legos!  We made it!!  :)

Pudding Playtime

Caleb has been working on his writing, but not with old fashioned pencil and paper! 

We've been using Cool Whip and chocolate pudding,

which double as great textures and tastes for Abby to try.


I think it's safe to say that it was a hit!

And Caleb even did some great spelling practice, spelling and writing words like cat, bat, and bed. 

He has officially declared himself The Master of Words.

I pray for his future kindergarten teacher! :)

Friday, February 10, 2012

What They Didn't Say

Those first few terrifying weeks of Abby's life, the doctors told us an awful lot of information.  They told us that Abby's chances of getting out of the NICU were very slim.  They gave us lots of statistics that showed us the odds were stacked against her.

They pointed out every little physical imperfection on her body, from her ears, to the bridge of her nose, to her fingers.  They discussed life expectancy, pediatric hospice, and DNR orders. 

They told us that she would never sit up, much less walk, but offered assistive technology to make our day-to-day easier. 

They were quick to set our expectations straight by informing us that she wouldn't be much more than a vegetable, if she lived.

But there was a whole lot the doctors didn't say.

They didn't say that Abby is so much more than a statistic. 

They didn't describe the look of adoration that would glisten in Abby's eyes as she signed "I love you." 

They forgot to mention that she would, in fact, sit up...and crawl...and walk.  They never said that she would do all of this in her own time because she's just that stubborn! 

They never once mentioned that the stubborn streak that she inherited from her momma has made her quite a fighter.  

Nobody ever really told us how difficult home nursing could be--or how wonderful it would be once we got a team of nurses who genuinely love and care for Abby (and our family!)  I don't remember anyone telling us that the therapists who would work with Abby would become friends whom we would trust and whom would be some of Abby's biggest cheerleaders.  

They didn't say how she'd follow her brother around the house, tormenting him, or how fiercely he would love her.

  They never said that we'd have such a supportive group of people following our little blog and celebrating Abby's every accomplishment.  They didn't know that there would be times when the comments people left on the blog got me through a particularly emotionally draining day.
 They didn't tell us that Abby's smile would light up a room, or that she could control the world with the simple "more" sign. 
They didn't say that her beautiful, thick brown hair would curl in sweet little ringlets in the back. 
They didn't tell us how our journey would expand our vocabularies until we both feel like we've been through a few years of medical school. They didn't say that words like decannulation, gastrostomy, and kyphosis would be every day terms.  They didn't do much to assure us that there really is life after a trach and a vent, and that we really would become pros at all of the medical equipment.

They didn't realize she'd love to go through the cabinets and make a mess faster than I could clean up after her. 

They didn't tell us how fast I would cry when singing You Are My Sunshine.

They just didn't know how much she would change our lives, or how she'd bring us closer to each other and God. They didn't know that our God is a God of miracles, and that He would be performing quite a few in Abby's little life.

They didn't know Abby.

Thursday, February 9, 2012

Thankful Thursday

I'm thankful for a husband who loves his kids and makes his family his priority.  The end.

*  I really would take pictures of Caleb...if he cooperated!  Most of what I take is of him fussing about him getting his picture taken, so the photos turn out just lovely.  I should post them anyway, as proof that I do photograph him.