Thursday, February 16, 2012


Emily is a 17 year old who has been such an inspiration to me in the last two weeks or so that I have had the pleasure of knowing her!  You see, Emily has know, Cerebrocostomandibular Syndrome.

And she is 17!!!

I have really enjoyed getting to know her story and emailing her mom.  With Emily's permission, I wanted to share the blog she just started about her journey with CCMS.  I hope that you will check it out and give her some blog love!!  She is a lovely girl, and I hope that we will be able to meet face-to-face one day.  Until then, I will happily read her blog with tears in my eyes.  :)

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