We headed to Philly yesterday for an appointment this morning with pulmonology. We went through a whole bunch of medical history with the pulmonologist, then began discussing the upcoming pulmonary functioning test. Our ENT was adamant that we have the test done in the OR in case something went wrong and she needed to be intubated. This pulmonologist wasn't able to do that, so we decided to have Abby do the test awake. It may not be the most accurate the first time, but we figure we'll try and at the very least she'll start to get used to it...she'll be doing them the rest of her life! This pulmonologist shared his perspective on having the VEPTR surgery , so it ended up being a "bigger" appointment than we anticipated. From his standpoint, he feels that doing the surgery before the breathing becomes an issue is better. He explained that once she starts to lose her pulmonary functioning, she most likely won't get it back. This makes sense, and...
Choosing joy and trusting God!