Life as a Leach

I'm guest posting this week on a friend's blog, but figured that some of you newer blog friends might like to read up on Abby's story too.   Cerebrocostomandibular Syndrome...ever heard of it?!  Don't worry, neither had we until October 22, 2010.  This ugly syndrome tried its best to take our daughter from us, but we serve a God who is SO much bigger than a syndrome no one has ever heard of!  Here is our story... Abby was diagnosed prenatally with Pierre Robin's Sequence, which is a small jaw and airway, as well as a cleft soft palate.  We were concerned, but confident that we could handle the potential feeding and speech issues that would come with it.  She was born at 34 weeks due to my fluid levels being too high. Shortly after her birth, a routine preemie xray showed that about half of her ribs were in multiple pieces, her sternum was not in tact, and her spine had a curvature and a hump.   Later that morning, we met with the geneticist who ga...