We're facing big decisions, folks. Ones that the doctors don't want to make for us because, as our ENT put it, "It's anyone's guess. Don't believe any doctor who says he knows the right answer, because it's just not true." We met with the new jaw surgeon today at Hopkins. He is extremely knowledgeable and has a lot of experience with jaw distractions , which is why they brought him on. We were really impressed with him and the before and after pictures he showed us of his past patients. During the distraction, an L-shaped cut is made on both sides of the jaw and metal bars are put in. The bars are attached to external screws that go behind the ear, which we will turn for 14 days. The external screws will be removed after that, but the bars will stay in her jaw for several months. Because of Abby's airway issues and the swelling around her face due to the surgery, she will be intubated and sedated for about 5 days before they attempt to ex...
Choosing joy and trusting God!