I went home (!!!) last night in order to be able to be a photographer for a 5k memorial race for a sweet little guy who was gone way too soon. It was a fun, bittersweet morning, but I was happy that Caleb and I were able to head up to KKI to spend some time as an entire family. Matt and Abby did just fine together last night and this morning, but we like being together! We played air hockey and Minions Monopoly, then painted some butterfly magnets. We all enjoyed dinner together before they left, so it was a really nice visit. It's just that they are never long enough!
We are all ready to be back together. I believe it will be soon!
For the time being, Abby and I will enjoy a trip to the aquarium tomorrow with some of our friends from KKI. :)
Abby rocked pt today, shocking us all by walking all the way through the tunnel to Hopkins! She did take some breaks, but she did 6 and 8 minutes consecutively with a hand! We were thrilled! She ate super well today too, enjoying the Doritos that her feeding therapist brought her. :). She started a tiny bit of school today too, which is at least a step in the right direction. I don't think going back to school will be an issue though. She does so well!
She enjoyed some time this evening in the therapy center, playing Minions Monopoly, The Price is Right, painting a lion keychain for her backpack, and beating on some drums. There's a new little girl who had a spinal fusion as well, so Abby and her have been playing. Her family is very sweet.
On Sunday, we will be going on a field trip to the Aquarium! She was really excited when they told her!
Abby took a little more convincing today when it came to therapy, but we managed to be productive. She is very reluctant to let go of my hand when walking, so I often have to be conveniently carrying things so that my hands are full! She caught on to it today and was some kind of bitter!! Her walking is getting better though and she is definitely getting stronger.
She had a rough morning because she REALLY didn't want to put her brace on this morning. It's Abby vs the Brace every morning, and she put up a good fight today. The brace (Momma) always wins in the end though! Once it's on, she is okay. It's getting the brace on that often resembles a wrestling match.
Abby's Grammy came to visit today, and they had a great time playing! Abby took her to the therapy center and they played Barbies, then we played Old Maid up in her room. Grammy brought her a little bird that chirps, talks, and records what you say, and Abby loved it!
Her bird said to take a selfie, so she did!
Another exciting thing that happened today was that Abby got to FaceTime with her class!!! She was super excited and the look on her face was priceless. The class was so excited and took turns asking questions. It meant so much to Abs because she has expressed concern that her class had forgotten her. Never!! I adore her teacher and her thoughtfulness with this!
This evening, a musician set up in the lobby and played music. Therapeutic recreation brought instruments for the kids and they all played along. He let anyone who wanted to sing in the microphone too, but Abby opted out. :)
Before bed, we put together a Lego set that Granmy brought her. She started out doing a lot of it herself, but the darn nerve pain started up and really bothered her, so I finished it up. I wish we could get on top of this nerve pain. Increasing the dose on her meds seemed to be helping, so I'm hoping this was an isolated incident.
Abby worked super hard in pt today, doing lots of walking unassisted while hunting for princesses and making words with magnet letters while standing. She also did a great obstacle course to bring me some silly hats! Her therapist is great and has really been creative with how she gets Abby to work.
Because she worked so hard during PT, she got to spend some one-on-one time with a therapy dog named Lucy Lu!
She played catch with her, brushed her, gave her a check up, and cooked her some food. It was so sweet and Lucy was really cute!
We have been working on eating with OT, which is a slow process, but she's getting there. She ate 1/2 a cupcake today and some cooked carrots.
This evening, I enjoyed a delicious meal from a restaurant in Little Italy, thanks to guest relations. They provide dinner for caregivers every Tuesday and it was a welcome change from the same old hospital food! (Or from the cup of peaches and applesauce off of Abby's plate, which I have eaten for dinner on more than one occasion when I couldn't get away!). They do a lot for the parents here, and it's so nice!
Abby got to meet another therapy dog this evening, which of course made her happy!
We topped the night off by putting together a fall wreath craft that my cousin Mary have to her yesterday. It's a great door decoration!
I gotta say, I've been pleasantly surprised at how hard Abby has been working! She's still grumpy with me, but at least she is working hard for the therapists!
Abby's first day went well. We eased into it with a nice long break between therapies, so Abby had plenty of time to play and rest. She was fairly cooperative, and I hung back to allow the therapists to establish their place as the authorities. Otherwise, she would never leave my side!
We also enjoyed a nice visit with my cousin's wife Mary, who has been through more than her share of medical stuff with her son too. It was really nice to chat and Abby enjoyed playing with her. Later this evening, Caleb and Matt came to visit. Abby always loves when they are here and hates when they leave. It's never a long enough visit. I miss my guys too. It's not easy.
I have to say that I am so impressed with the staff here. Everyone we have encountered, from techs to nurses to therapists have been excellent. Everyone is attentive, great with the kids, and focused on the work. The therapy center is fantastic and Abby loves going there! She did several crafts, played games, watched a movie, and did a puzzle today! They meet each kid where they are at and I love it! I even saw a therapist give a girl with poor hand control some special egg-shaped crayons that she bought this weekend especially for her so that she could color easier. Watching that sweet gurl's face as she colored by herself was so beautiful! Like I said, I've been really impressed.
Tomorrow's therapy alternates more, so Abby doesn't get as big of a break. We will see how she does! We also have our family meeting tomorrow to determine goals and a timeline.
Today was a nice day of relaxation! There are no therapies on Sundays, so we just hung out. Abby slept until after 9 and then we headed to the therapy center (playroom) after breakfast. They have some great Barbies that Abby loves playing with! After her lunch, we strolled to Hopkins so I could get some food and we visited the gift shop. Abby went back to the therapy center for more play time while I got a quick shower. Any day I get a shower in the hospital is a good day! The therapy center staff is excellent and they really love the kids, so I felt comfortable leaving her for a little while. I've been really impressed with all of the staff here!
Our roommate's family is so very sweet! I have really enjoyed getting to know them. They even offered to bring me food from The Children's House where they take turns staying! They really love their son and are committed to helping him in any way they can. I am so thankful that we made the room change and are now with like-minded people.
Tomorrow starts the intensive therapy, so let the fun begin!
Really, I do! But I don't love when he tears up my daughter's brand new Calico Critters that she earned from Nina by working so hard at pt. I don't love when he tries to steal her food. And I really don't love when his 100 pounds runs into her multiple times and I have to catch her once because she's about to fall over.
The mom didn't even tell me about the toys until later, and she wasn't at all apologetic. In fact, she told me the dog chews toys all of the time! Even when Abby was sobbing over the dog eating her toys, she didn't really seem to care. She made it pretty clear she really didn't want us there.
Since this became a safety issue with the dog running into her, I asked for Abby's room to be moved. They have had multiple problems with this parent and completely understood. After some thinking, they placed Abby with a little boy who has a very nice family and is very quiet. He is pretty much bedridden and I haven't heard him talk, but the mom is very sweet. I think we will be very happy here. And I am really glad the drama is over!
Abby eased into therapy today with just an hour of pt and an hour of ot. Both were just evaluations, so they basically wanted to see what Abby could do. She wasn't overly cooperative, but they managed to see what they needed to see.
We spent the afternoon hanging out with Caleb and Matt, and then Nina, Paw Paw, Anna, and Lucy! Abby loved all of the visitors and playing together. There's a fantastic staffed therapy center that is a therapy-focused playroom. It has just about every toy imaginable and the kids had fun playing. There's no therapy on Sunday's, which means we can sleep in, enjoy the therapy center, walk over to Hopkins, and maybe get outside a little.
Besides the room drama, today was definitely calmer than yesterday! The staff has all been super nice and helpful, and all of the techs are really great with the kids. Abby is still distrusting of pretty much everyone, but I'm hoping she comes around soon. Until she does, I am the only one who can touch her! I'm looking forward to getting into a routine on Monday and truly starting therapy.