Monday, March 13, 2017

Moms Can't Get Sick

Our whole family has had crud of varying kinds this last week.  Now it's my turn, except that moms can't get sick!

Chloe has been keeping me company, and Matt has been great about taking care of the kids!

 

I am feeling a lot better and am just waiting to be fever-free for 24 hours before I get close to the kids again.  So we prayed and sang like this tonight before bed!

 

I would LOVE to have a snow day tomorrow, but my chances seem to be slipping through my fingertips. :(

Thursday, March 2, 2017

Heading Home

We are going over the Bay Bridge, heading home.  The brace company made a bunch of adjustments to the brace so that we could access her ear better. We were also able to put there a piece of the Duradry fabric we have for her chin, so we are hoping that will keep the brace from rubbing.   I was able to clean the area and it is definitely infected.  We are hoping that the brace changes will allow the infection to air out and heal.

We still need to go to our appointment at the end of the month because he wants to get X-rays at the 3 month mark and see how things are looking.  

It's a lot of driving for one day, but Matt doesn't mind and Abby has been fantastic in the car.  Another successful road trip to our Philly vacation home! 😉

Wednesday, March 1, 2017

Heading to CHOP Tomorrow

Sadly, Abby has had a fever all day and is feeling lousy.  She has no other symptoms and has been completely homebound, so we are pretty certain it's from the infection.  After lots of phone calls back and forth to our pediatrician and CHOP, ortho and the orthotists want to see her tomorrow. They will take a good look at the infection without the halo as well as make adjustments to the brace to keep this from happening again. 

We are not planning on staying, but we have been around the block enough times to know to pack a "just in case" bag. 

Road trips are a lot more fun when the destination is vacation.

Tuesday, February 28, 2017

Living With a Pinless Halo: Skin Breakdown

One of the biggest worries with a pinless halo is skin breakdown.  Because the halo is right on the skin, it constantly rubs.  Other braces can come off to allow the skint to breathe, but not the pinless halo.  We were warned that this is usually the biggest issue.

Abby has had her pinless halo for about 2 1/2 months now.  (WOW!!)  We have been very diligent at bathing her and checking carefully for skin breakdown.  She had issues around her jaw for a while, which we were able to address and basically cure!  Our recent battle has been around her ears.  Her left ear has been in a lot of pain from the brace rubbing against it.

This morning, she was screaming in pain to the point where I really felt that I needed to see what the issue was.  I knew it was rubbing, but could only see redness.  This seemed like more than just a little irritation.  After shining a flashlight and getting creative with looking under the halo, I realized that one part had caused a pretty deep gash on the lobe of her ear and it had become infected.  This was completely covered by the halo, so we had no way of knowing.  Matt took her to the doctor this afternoon.  After consulting with CHOP, the pediatrician gave her an oral antibiotic.  CHOP also said that they would notify the brace company so that additional padding could be added when she goes for her next appointment.  If she gets a fever, we are to head to CHOP.  But, we are hoping that the antibiotic will take care of it!

If your child has a pinless halo, be relentless about skin care, but also listen to your child!  If something hurts, investigate it.  You may not be able to easily see the problem, but you need to address it before it becomes more of an issue.  I wish I had caught this sooner, but it was just really hard to see!

Monday, February 27, 2017

Abby's new room

Abby got her new furniture tonight.  This was her while she was waiting for the guys to set it all up.
 

 

Chloe approves too!!

 

One of Abby's favorite things is that she can open all of the drawers by herself--with just one hand.  Her antique furniture was very difficult for us to open, let alone her!

 

 

 
She is one happy little girl!  I have some work to do tomorrow with organizing everything and we are still working on figuring out the best place for the feeding pole (it's making the dresser have to be off-center).  I'm going to get a new book shelf, get a twin dust ruffle, move the mirror, and put a new white wall shelf in.  There's work to do, but it is definitely an exciting day!

New Accessory

Caleb is going to be joining the glasses club!  He has astigmatism, so he will need them to see distances.  

We bought two pairs because he's a scatterbrained 4th grade boy, but one pair will stay home all of the time.  

 

 


Sunday, February 26, 2017

Such a Sweet Gift!

Abby's amazing one-on-one went on a Disney cruise and brought her back the sweetest gift!  

 

She brought pictures of Abby and then got a picture taken with Anna, Olaf, and Elsa while holding the pictures.  She got them all to sign the picture and brought everything home for Abby in this case.  Isn't she the best?!?!?  Seriously!!!