A few days ago, we gave the nurses a little thank you gift from Abby. We try to show our appreciation every now and then with something small, and I hadn't done anything in a few months. The Lock & Lock water bottles that I purchased from the Christmas in July sale were perfect! I put two flavored water packets inside each one and stamped a quick little gift tag for each. It made for a nice little gift! (BTW: this kind of a thing would be a great and inexpensive teacher gift...coming from a teacher who has a whole lot of coffee mugs...) :)
If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...
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