Two fabulous things happened today. I must share!!
First, and absolutely the most important:
We have a home date!!!!
Now, I know that this is subject to change and I shouldn't get too excited about it...but it is incredibly encouraging to me to actually have a date. It's no longer "Mid January." It's now January 18th!!!
There's a lot that has to happen between now and then, but we're getting there!! The next two weeks (TWO WEEKS!!!!) will be a whirlwind. I apologize now if my posts become a little less frequent.
Also, Abby got to test out her new speaking valve today! That was the exciting happening I alluded to yesterday. It's kind of difficult because she has to work a whole lot harder with it, so we're starting with very short trials. However, Abby's 45 seconds pleasantly surprised the speech-language pathologist who was a bit skeptical of her ability to use it at all given her weak lungs. She commented many times on how well she did.
Yes, I know 45 seconds is not very long at all. But for a tiny baby with chronic lung disease and a whole mess of other issues, it's a century! Baby steps, baby steps.
The sad part is that the girl didn't make a darn sound the entire time! We did 3 trials throughout the day (each one about 45 seconds) and she looked at me like she had no idea what to do with herself. We'll definitely have a conversation before tomorrow's trials so that she's aware of her job in all of this. I kept telling her that now was her chance to talk!
Funny story about that...when I said that, the SLP looked at me and said quite cautiously, well, Abby probably won't make much more than a coo or a gurgle at this point. She won't really be talking yet.
Ha! Yes, I realize that. Thanks for the reminder though.
Ohhhhhhhhh...AND I found out that there are a couple of nurses interested in working for us! We'll be interviewing them over the next week and hopefully finding a few good matches.
Fabulous news all around, doncha think?
First, and absolutely the most important:
We have a home date!!!!
Now, I know that this is subject to change and I shouldn't get too excited about it...but it is incredibly encouraging to me to actually have a date. It's no longer "Mid January." It's now January 18th!!!
There's a lot that has to happen between now and then, but we're getting there!! The next two weeks (TWO WEEKS!!!!) will be a whirlwind. I apologize now if my posts become a little less frequent.
Also, Abby got to test out her new speaking valve today! That was the exciting happening I alluded to yesterday. It's kind of difficult because she has to work a whole lot harder with it, so we're starting with very short trials. However, Abby's 45 seconds pleasantly surprised the speech-language pathologist who was a bit skeptical of her ability to use it at all given her weak lungs. She commented many times on how well she did.
Yes, I know 45 seconds is not very long at all. But for a tiny baby with chronic lung disease and a whole mess of other issues, it's a century! Baby steps, baby steps.
The sad part is that the girl didn't make a darn sound the entire time! We did 3 trials throughout the day (each one about 45 seconds) and she looked at me like she had no idea what to do with herself. We'll definitely have a conversation before tomorrow's trials so that she's aware of her job in all of this. I kept telling her that now was her chance to talk!
Funny story about that...when I said that, the SLP looked at me and said quite cautiously, well, Abby probably won't make much more than a coo or a gurgle at this point. She won't really be talking yet.
Ha! Yes, I realize that. Thanks for the reminder though.
Ohhhhhhhhh...AND I found out that there are a couple of nurses interested in working for us! We'll be interviewing them over the next week and hopefully finding a few good matches.
Fabulous news all around, doncha think?
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