Tuesday, January 4, 2011

Awesome Day!

Two fabulous things happened today.  I must share!!

First, and absolutely the most important:

We have a home date!!!!
Now, I know that this is subject to change and I shouldn't get too excited about it...but it is incredibly encouraging to me to actually have a date.  It's no longer "Mid January."  It's now January 18th!!!

There's a lot that has to happen between now and then, but we're getting there!!  The next two weeks (TWO WEEKS!!!!) will be a whirlwind.  I apologize now if my posts become a little less frequent.

Also, Abby got to test out her new speaking valve today!  That was the exciting happening I alluded to yesterday.  It's kind of difficult because she has to work a whole lot harder with it, so we're starting with very short trials.  However, Abby's 45 seconds pleasantly surprised the speech-language pathologist who was a bit skeptical of her ability to use it at all given her weak lungs.  She commented many times on how well she did.

Yes, I know 45 seconds is not very long at all.  But for a tiny baby with chronic lung disease and a whole mess of other issues, it's a century!  Baby steps, baby steps.

The sad part is that the girl didn't make a darn sound the entire time!  We did 3 trials throughout the day (each one about 45 seconds) and she looked at me like she had no idea what to do with herself.  We'll definitely have a conversation before tomorrow's trials so that she's aware of her job in all of this.  I kept telling her that now was her chance to talk!

Funny story about that...when I said that, the SLP looked at me and said quite cautiously, well, Abby probably won't make much more than a coo or a gurgle at this point.  She won't really be talking yet.

Ha!  Yes, I realize that.  Thanks for the reminder though. 

Ohhhhhhhhh...AND I found out that there are a couple of nurses interested in working for us!  We'll be interviewing them over the next week and hopefully finding a few good matches.

Fabulous news all around, doncha think?

6 comments:

mom said...

It's so wonderful to hear some good news. Now, praying that the nurses have been chosen just for you! Can't wait for her to hear her voice!

Erin said...

Fabulous! Fabulous! Fabulous! I'm so excited for you!

Becca said...

That is fab news, Julie! What a fighter she is. Must take after her mama.

Sandy said...

Many continued prayers sent your way-especially for all your needs to be met-keep your eyes on God & He will continue to lead all of you through this. You will be the best advocate for Abby-you just wait & see. After awhile you will look back on this time & realize just how very much you know in taking care of her. Loving you all from afar, Sandy Murphy

Ashley said...

I dunno Julie, Jett is almost speaking in sentences...you need a new SLP who knows abby should do more than coo at this point in her life!

Julie said...

Wow, Jett is advanced! Bring him in to show this SLP what babies can do! :)