I've Never Been So Excited to Hear a Baby Cry

Tonight, Abby made her first noises on the Passy-Muir Valve (her speaking valve). Until now, she's just kind of stared at us in a panic because it feels (apparently) really different and it's harder for her to breathe with it. That's why we only do it for short amounts of time to build up her tolerance.

This time, though, Abby was mad! She was tired of people messing with her and was not happy about the PMV. Of course, the first thought that entered my head was Good! Now I'll be able to hear her cry! Sadistic? Perhaps...

And yes, for all of you assuming I did anyway, I did cry.

Unless you have been in this situation, you really can't understand how difficult it is not to hear your baby make noise. You know what they should do, and it's just one more thing to add to the laundry list of What Abby Won't Do. While most people wish their kids wouldn't cry so often, I would absolutely love to hear my girl cry.

And tonight, I did!

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Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it never wi

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head. It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!! (Note the Lysol wipes in that last picture. They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun! They played lots of their own music, with some classic rock mixed in for the adults. There were also quite a few jokes and references to Baltimore, which was kind of fun. The whole night centered around this robot named Rock-o-Matic, or "Rocko." This is Mover Scott, and he wears Wobble Goggles that help him see new ideas. Caleb and Abby have a pair of goggles too. :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap. The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers Caleb did his share of singing and dancing too. He knows most of the words to the songs, so

Life as a Leach

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