I haven't done this for a while. I'm watching Survivor and they separated the young from the old. Young = under 30. Old = 30 or older. It made me just a little bit sad that I would be one of the oldest "young" people in the tribe if I were on the show. Yikes! I have been having tons of Braxton-Hicks contractions. Most aren't painful, although some really kind of are. I have them pretty much every evening. I keep telling my body that it doesn't need to practice so much because it has already been through labor once. It's not listening to me. Yep, there's another one. Yay. I have another round of appointments tomorrow. I can't believe it's been 2 months since we found out about Abigail's condition. What a whirlwind! I have a sonogram first and we're hoping to get some information from the doctor we like. I have gained a lot of weight this month while eating very well (lots of fruits and veggies for snacks, avoiding ice cream and sweet treats, choosing a 100 calorie pack if necessary, drinking lots of water, etc.) and I'm a bit concerned about my amniotic fluid levels. We'll find out tomorrow. I have been battling FMLA and insurance in the last week, but I think I have wrapped my brain around it now and have a pretty good understanding of it. My allergies have been bothering me the last few days (ragweed) and I've been doing my sinus rinse to try to avoid getting truly sick. I do not need that. We will also be having an OB appointment tomorrow and I'm hoping to get a date for Abigail's birth! I really need to have a "going out" day for FMLA, and I need to know for my own piece of mind as well. I'm hoping to get on the calendar. After our two UMD appointments, I will be heading back to my primary care provider to get my flu shot. Matt is getting one too! In case you have missed all of my other warnings, if you want to visit Abigail in the hospital, you must have a flu shot. No one will be allowed in the NICU without one. That's just the rule--probably more strict because of flu season, but still it's better safe than sorry. I hate to say it, but I doubt if anyone without a flu shot is going to see Abby for a while even after we get home. She will be very susceptable to illnesses and with her breathing problems, she really can't afford to be sick. Soooooo, get a flu shot!! I am watching Survivor after having paused it for the first half an hour, but I keep forgetting to fast forward through the commercials. Ooops. That kind of defeats the purpose of pausing it. I always feel better after doing the stream of consciousness. I treat it like a mind dump and it seems like my head is clearer afterwards. Maybe I'll be able to fall asleep earlier tonight!
If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...
Comments