Today was my original due date, as determined by my first [of many] sonogram. When I think about how Abby wasn't really supposed to be born until today, I am amazed that she is nearly six weeks old! Of course, after learning about her small jaw, we were never going to go past November 8th. Still though, it's crazy to think about how big Abby would be if things had been different. She was 4 lbs at 34 weeks at half a pound a week, she could have easily been 7 lbs at birth!
If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...
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