Traveling With Lock & Lock

What vacation would be complete without Lock & Lock?!? (and Lysol wipes!)

I packed a whole bunch of containers full of snacks for the ride and food to munch on while we were there. I used a variety of sizes so that I would have some choices if I needed them (and I did--many times!)

We packed Abby's suction catheters in this one. It's actually a lunch box, but it is a great size for all sorts of things and has a handle. This held 40 catheters.

This divided box was great for some of her medical supplies.

I packed all of her trach care stuff in this one.

We took a container full of icy water with us to Dutch Wonderland so that I could wipe Abby down and keep her cooler. The L&L box was perfect because it doesn't leak.

Thrifty tip: stay at a hotel with a free breakfast. They almost always have bread and bagels, so bring a jar of peanut butter (ours had tubs there) and make sandwiches for lunch. :)

We brought two different coolers with us because we had a bunch of frozen milk to bring. One was larger than the other, so we used them for different things. This is the L & L cooler bag I got recently, which came in handy quite often. It's smaller than the other one we brought and was a good size to bring with us to the park. It fit nicely on the stroller and holds a lot of food.

Side note: The downside to having soooo many bags on your stroller...that the security guard has to check them all! I'm pretty sure we had some people annoyed with us as we opened our 15 different bags and then had to explain that it wasn't a bomb-making kit, it was a suction machine. :) One security guard took one look at Abby and just waved us on through.

Comments

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head. It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!! (Note the Lysol wipes in that last picture. They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun! They played lots of their own music, with some classic rock mixed in for the adults. There were also quite a few jokes and references to Baltimore, which was kind of fun. The whole night centered around this robot named Rock-o-Matic, or "Rocko." This is Mover Scott, and he wears Wobble Goggles that help him see new ideas. Caleb and Abby have a pair of goggles too. :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap. The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers Caleb did his share of singing and dancing too. He knows m...

Life as a Leach

Search This Blog