Skip to main content

UMMC conference

Next Tuesday, I will be speaking at a UMMC conference on how to help families of children with life-limiting illnesses.  This conference is for medical professionals at UMMC, as well as students at UMB.  It's an all-day conference whose entire focus is pallative care for critically-ill children, so I'm excited to hear what some of the speakers have to say.  I love that UMMC finds pallative care important enough to devote an entire conference to it.  Unfortunately, pallative care often gets pushed to the side.

I will be part of a parent panel for a session entitled, “When It’s Your Child: Parent Reflections On Life-Limiting Pediatric Illness.”   There will be three of us on the panel representing a variety of medical needs. 

Will you please pray for me over the next week?  I am so excited about this opportunity, but a little nervous about the number of people that will be in the audience.  I'm not a public speaker (that may sound strange, since I'm a teacher...I'll talk to a group of 10 year olds all day long!  These are medical professionals who are way more intelligent than I am!!!), and this group will be much larger than the other groups I've spoken to thus far.  I'm looking forward to sharing our experiences--both good and "challenging"--and can't wait to tell of the miracles performed in Abby's life!!

Comments

Anonymous said…
You have my prayers, but remember, these doctors are not more intelligent than you are. Intelligence refers only to your mental capacity and ability to learn. They are more knowledgable than you... But only in certain areas. You have a knowledge base they don't have and probably never will have- the things you have learned about having and loving a child with a disability.

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it ...

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows m...