Skip to main content

Speaking at the NICU

Matt and I had an amazing opportunity today as we spoke to the NICU staff that saved Abby's life.  We loved thanking them for taking care of our daughter.  We loved showing her off.  We loved seeing so many familiar faces. 

But what was the most amazing part was that we were able to share our faith and hope in Christ with so many people.  How could we not tell Abby's story without giving credit to the One who performed all of the miracles?!  There may be no medical explanation for why Abby's spine is straight, her sight and hearing are fine, her rib gaps are closing, or her cognitive ability is on target....but we know why.

We were impressed with how reflective the group as a whole was and how they really seemed to be taking our concerns and suggestions to heart.  While our talk was mostly about Abby's miracles, we were also asked to include some ways the NICU could improve.  There were a few things that we wish had been different, most of wish involved communication, and the staff had an open dialogue at the end about ways that they could avoid those problems in the future.  We even heard a few doctors discussing how there needs to be training on how to be a better communicator. 

One of the greatest comments that was made by one of the doctors is that they all need to remember that they really do not know the outcome of a situation, and it is wrong to make something sound certain and take away a family's hope.  She then said that Abby is living proof that doctors don't always know.  I agree.  :)

At the end, we brought Miss Abby in (she was hanging out in a little side room with our nurse) and they oohed and ahhed over her and remarked about how fat she had gotten.  :)  It was awesome for them to see her. 

I think it was really nice for the staff to hear a success story when, all too often, there's a lot of sadness in the NICU.  It was really nice for us to be able to share it too!

Over the next few weeks, I will be working on a few other writing pieces related to our life with Abby.  I am constantly floored by how God took a seemingly hopeless situation and turned it into something so beautiful and FULL of hope!  While I never would have pictured my life this way, it's exciting to see the opportunities God is giving us that we never would have had otherwise. 

Thank you guys for praying.  I was surprisingly calm throughout and only choked up a few times.  (If you know me, you know that's no small feat!)  :)

Here's a sweet little picture of Abby playing with one of the respiratory therapists who took care of her a lot.  I meant to take more pictures, but I was too busy chatting afterwards!

Comments

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi

The Potty Man

Caleb LOVES to go potty! I have never heard a potty training story like this one....Caleb tells us when he needs to go, we take his diaper off, and he goes! Now, is it perfect? No, not at all! We aren't trying to potty train at at all, but we figure every time he goes is one less diaper we have to change! The only time we consistantly put him on the potty is when we give him a bath (he always pees in the tub, so we know he needs to go!) He almost always goes on the potty now instead of the tub though. When he's not "really" going potty, he's pretending to go potty! He's such a funny kid!

Lego Party: Favors

I'm a little slow in posting the Lego Party pictures, but I think I have a few excuses I could use.  At any rate, I wanted to share what I did for the party!  It will take a few posts, so stay with me.  I'll start with how I did the favors. These are the goody bags I made.  I just bought solid colored gift bags and matched scrapbook paper to each bag.  Then I punched circles and attached them with the 3D foam tape so that the circles were raised. I used the keychain (explained below) as a name tag on the outside. These are Duplo blocks.  I put a round magnet on the back and...voila!  A magnet!  (note:  hot glue doesn't work so well...I ended up reglueing them with my apoxy because the magnets fell off.) I made crayons using Lego man crayons.  Yes, I know this guy has lost half of his leg.  The others were already packaged and I didn't want to open one up just to get a picture.  I used a Lego mold  to make the crayons.  Caleb put small pieces of crayon in each m