I got my first real negative comment last night! I'm a real blogger now! :)
It's not something that I can take offense to, because it was written anonymously by someone who seems to only know my family by what I post on the blog. But I do want to clarify a few things, in case it made anyone else wonder a bit.
Matt read my original post this morning and said it did kind of make it sound like we are against giving Abby pain medicine. Oh no! I'm sorry that I made it sound like that!! We are very in tune with her pain needs and give them to her whenever we feel like she is in the slightest bit of pain. For Abby, she acts perfectly normal until bedtime, when her mouth does seem to bother her a bit. We give her Motrin or Tylenol then (Motrin seems to work better for her) and wait to see if the pain continues. It never has and she falls asleep fairly quickly after she gets the dose. If Abby did continue to be in pain, we would certainly give her a stronger medication. We do not want her to suffer!!
Also, the "trach collar" comment caused me to google it, because all of Abby's doctors and nurses (both as out-patient and in-patient) have called that a trach collar. In my search, I found that it seems like the term "trach collar" is used for both the thing Abby has used (that I posted pictures of) and a plastic piece that is used as an extra protectant for the trach tube. The thing I called a trach collar does provide humidified air, and would also give her oxygen if she had a requirement. So, neither of us is wrong. It just seems to be a catch-all term.
So, I hope that this clears things up a bit. I appreciate that everyone is looking out for the best interest of Abby--and certainly no one on this earth loves her more than we do! If my anonymous friend would like to continue the conversation, please email me at the address given. Thanks! :)