Skip to main content

I'm Beginning to Really Hate Tuesdays

It was a Tuesday when I was sent home from the hospital because my insurance decided not to pay anymore, even though I was a high risk patient.

Abby went into respiratory distress on a Tuesday and was medivaced to JH.

This Tuesday, Abby was readmitted into the hospital because of wheezing and the need to increase oxygen levels.

I'm really beginning to hate Tuesdays!

So, here's the whole scoop.

I called Abby's pulminologist to see if I could bump up her appointment (originally set for the end of March), since she had had RSV.  They said that there were no available appointments, but they would put me on the waiting list. 

Then a nurse called back asking for more information about the RSV.  I filled her in and she asked if Abby was still having trouble.  I explained that Sunday night, we had needed to put Abby back on oxygen and had needed to increase it several times since then.  We'd also increased her nebulizer treatments and had taken her to her pediatrician on Monday. 

The nurse was pretty concerned and told me that she would talk to the pulminology team and call me back.  When I heard from her, she said the team wanted to see her.  The best way would be to bring her through the Pediatric ER at JH.  So, I called Matt, gathered stuff up, and off we went!  Thank goodness this wasn't an emergency this time.

After repeating the trach culture, RSV test, chest xray, and blood work, the pulminology team decided to admit her at least overnight.  This morning, it was learned that the trach culture showed a bacterial infection.

Read:  That's not good.

While they're still waiting to determine what caused the infection (it has to grow), there's definitely something there.  She's receiving IV antibiotics and being monitored.  We'll most likely be here through the weekend, but it's really up to Abby.  (Aren't most things these days up to her?!)

Soooooooooo, here we are again.  The bright side?   I'm getting lots of cuddle and play time with my girl.  She's been smiling at me a lot.  :)

Comments

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it ...

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows m...