Waiting in a Yellow Gown

Today wasn't the happiest day at Mount Washington. I came into Abby's room this morning to discover that she has been put on contact precautions, which basically means that she may have something others can catch. Sooo, anyone that comes within three feet of her must donn a yellow gown, gloves, and a mask.

I was thinking my yellow gown days were over! Not to mention that I hate that Abby can't feel my hands or see my face when I hold her. It's just so impersonal! But, I understand that this is what we have to do in order to keep it from spreading even more.

Our other piece of not-so-great news is that we will probably be here at least another month. That's if everything goes well and there are no set-backs....which probably means more than a month. We're just really starting to feel the stress of being apart for so long, so I think we're all ready to just be at home again...together.

But, we'll do what we have to do to ensure that our girl will be safe and truly ready to come home!

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Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...

Bath Time Photos!!

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Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun! They played lots of their own music, with some classic rock mixed in for the adults. There were also quite a few jokes and references to Baltimore, which was kind of fun. The whole night centered around this robot named Rock-o-Matic, or "Rocko." This is Mover Scott, and he wears Wobble Goggles that help him see new ideas. Caleb and Abby have a pair of goggles too. :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap. The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers Caleb did his share of singing and dancing too. He knows m...

Life as a Leach

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