Skip to main content

Big Brother

On Friday, Caleb met with Ms. Megan, the Child Life Specialist who works with Abby.  Our goals for their session were for Caleb to be introduced to some of the medical equipment Abby has, to get Caleb to open up about his feelings about Abby's trach, and to allow Abby and Caleb to "play" together! 

It was awesome!  Megan is wonderful at allowing Caleb to explore at his own pace.  He naturally wanted to check out all of the toys in the room and pull everything off of the shelves.  Slowly, Megan introduced the idea of playing doctor.  She had a little doll with a trach and a g-tube.  Caleb was allowed to "feed" the doll through the tube just like we would with Abby.  He loved sucking the water up with the syringe!  Megan even pulled out the Kangaroo Bag that we will be going home with, since the way she is being fed now is slightly different than she will be at home. 

Megan also had all of the actual medical supplies we use with Abby:  suction, ambu bag, catheters, gloves, syringes, trachs, etc.  Caleb was allowed to touch and try out everything.  He even "suctioned" the water out of the cup!  (That ended up backfiring on us a bit because he announced later that suctioning Abby was now his job!)

Oops!

In his three year old way, Caleb lost interest pretty quickly.  He made it clear that he didn't want to talk about the trach or his feelings about it at all, which was pretty telling.  Megan was able to pull things in every now and then though, and I know Caleb absorbed way more than he let on.  I look forward to discovering just how much he actually got out of it over the next few days.

The best part of the session for me was being able to bring Abby out into the playroom!!!  This was the very first time that she has ever been transported anywhere without being on some kind of stretcher or isolette, so it was very exciting.  Matt and I even got to carry her to and from her room!!

It's quite a production taking her anywhere, and it didn't help that she was in the middle of a feed.  If she hadn't been eating, we could have lost the pole.
Caleb had a great time learning how to play with Abby.  I think he realized that he could do a whole lot more than he thought.  He especially enjoyed tickling her toes, pretending to talk with her on the phone, and getting her to grab the beads.
It was wonderful to see the two of them together in a more natural environment.  For once, Abby was at Caleb's level and he could do more than just lean over her crib.






 





Now that Megan knows Caleb a little better and has identified the touchy subjects, she is going to meet with him several more times throughout our stay so that she can help him become more comfortable with the trach.  I can tell she's going to be wonderful!

Comments

ashleigh nicholas said…
Awe how sweet! At least your making progress with Abby and who doesn't love seeing their kids getting along with one another! BIG steps Abby, BIG steps! Good luck Mrs. Leach!
So cute! Abby had some crazy hair going on.

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it ...

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows m...