Tuesday, December 28, 2010

Cerebrocostomandibular Syndrome

Five people have found my blog by searching Cerebrocostomandibular Syndrome in the last month.  Now, I'm not sure if they are people who know me who just couldn't remember the blog address, or if they are people who need to find out more information about the syndrome.  I'm hoping it's the latter because I really do want to connect with people whose children have CCMS.  If you are reading this and your child has been diagnosed, PLEASE email me!  I would love to talk with you. 

From time to time, I'll do a post with the title of Cerebrocostomandibular Syndrome so that it will show up in Google if someone searches for the syndrome.  Between my blog and Reagan's, we just want people to know that there are real families out there dealing with CCMS!

1 comment:

Alex Beckman said...

Hi! My name is Alex Beckman, my husband and I just had a daughter (8 weeks old now) with CCMS. After looking through your blog and reading about your sweet abby, i couldn't help but contact you. I'd love to e-mail you more, even though i have never met you or your adorable family, I can relate to all you write about with joy in my heart yet tears in my eyes. The Lord IS so faithful to give us such PERFECT children. Without Him this journey would be impossible. Please e-mail me when you get a chance at alexblix@hotmail.com! Looking forward to it! Blessings! -Alex