I have started allowing Caleb to wear "big boy underwear" for short periods of time. He has to pee before he puts them on, and he can only wear them for 20 minutes at a time (unless he pees...then he gets another 20 minutes!) We've done this a couple of times now and he LOVES it! (That could be because we let him run around almost naked...not quite ready to actually put clothes on over top of the underwear yet!) :)
If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...
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