Skip to main content

Post op day 10

Image
By
Yesterday proved to be a bit much for Abs.  She fell asleep at 6 pm and I had to wake her up at 10:30 am!!  She also, unfortunately, got sick last night and lost her entire feed.  It was sad. :(

Her respiratory rate was also really high all night, so the team took these 3 pieces of info and decided that maybe we pushed Abby too far.  They decided to step back a little to two 2-hour sprints today.  She did really well today and was able to stay awake all day for the first time.  I'm hoping we are headed in the right direction.

Abby enjoyed lots of arts and crafts today!  

She made a red panda craft,
 

And a picture of Poppy (with a little help from the art therapist!)
 

She also finished this lovely stained glass project from a fellow VEPTR family! 

She spent a lot of time playing with Model Magic too.  We made snakes, a bird nest, eggs, a bird, flowers, and a butterfly.  It's pretty fun!

We also did quite a bit of walking today, now that we finally have access to a portable pulse ox!  I'm hoping maybe I will convince them to let me take her off of the floor tomorrow. :)

We were hoping to come home this weekend, but the weaning is going a bit slower than we thought and we don't want to push her too hard.  We won't leave until she is ready.


Labels:

Comments

Post a Comment

Popular posts from this blog

Cerebrocostomandibular Syndrome

By
If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it ...
10 comments
Read more

Bath Time Photos!!

By
As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)
Post a Comment
Read more

Imagination Movers Photo Recap

By
Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows m...
13 comments
Read more