Dr. Campbell just came out. They are about halfway done. They took out the right long rod because it was in the way and still have quite a bit of work to do. She's doing well, but it will be 3 hours or so.
If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...
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"Dr. Campbell just came out. They are about halfway done. They took out the right long rod because it was in the way and still have quite a bit of work to do. She's doing well, but it will be 3 hours or so." That's good. That's good. Thanks be to God!! Hang in there, Mama!! Hugs and prayers!! ;-D
"Stay hard, stay hungry, stay alive", Raelyn