This morning, Abby got a visit from Queen Elsa herself! This sweet college student dresses up as princesses for parties and wanted to spread a little joy at the hospital. Abby loved it!
Then, Abby had PT with her primary therapist who takes on the VEPTR cases. After having Abby walk and attempt the stairs (SO hard!), she felt that Abby could benefit from intensive therapy before heading home. The rehab doctors did an evaluation on her later today and agreed that inpatient rehab is necessary, so she will be heading there pretty soon.
The timeline will be determined by insurance, bed availability, and when her brace comes. She was supposed to get it today, but when the people came to fit her, they determined it didn't fit. Turns out, the guy who measured her wasn't overly accurate....oops. She was remeasured and also scanned to create a digital image of her back, so it will hopefully be done right this time! We should get it in the next two days.
Because of the upcoming move to rehab, we had several visits from case managers, the nurse practitioners, and other hospital staff. I also had a few phone calls from insurance case managers.
There was another bright spot at the end of the work day when Abby's favorite Mr. Pawel came to do some musical therapy. She always tells me how much she loves him after he leaves. :)
So yeah...busy day! :). We are hopeful that we will move to rehab in the next few days. In the meantime, we are trying to do lots of walks, getting her to hold her head up, and promoting using both hands for activities. We have also been playing lots of math games and reading books on RAZ kids. No rest for the weary when Momma is around! :)