Physically, things are tough. She has only gotten out of bed to transfer to the bedside potty, but she has yet to really be able to bear weight on her legs. I try every time she transfers, but her knees buckle and she collapses into me. (I've got her! Don't worry!) PT didn't come today, so I'm hoping that tomorrow they will be able to work on that a bit.
Abby doesn't have a pain pump this time, which has been a little more of a problem. Before, we would just push her button before moving her. Now, all she can get is a rescue dose of Dilaudid every 4 hours. That takes about 1/2 an hour to get, 5 minutes to infuse, 5 minutes to flush, and another 5 minutes to begin working. Not so speedy!! This is especially challenging when we never know when therapists are coming, or when she will need to go to the bathroom! We are trying to time things accordingly, but that doesn't always work out.
I'm hesitant to do too much without a PT consult first, but we have been playing lots of games, doing crafts, and reading books on RAZ Kids. Her mind isn't going to turn to mush!
She is earning TV time with sweetness, cooperation, and nice manners. :). I have a sticker chart going and 5 stickers = 1/2 hour of tv. So far, it is working really well!! She has been much nicer to me than she usually is post-op. :)
I wanted to share some pictures she got taken recently for Make a Wish. These will be used in future print and digital promotions and advertisements!