She is still making it quite clear that she HATES the brace, but she is at least resigned to wearing it. I got permission to remove the neck piece during meals so that she can eat easier. I have lost count of the number of times I've reminded her "you can do hard" through the therapy, pain, and brace-hating. 😕
Overall, today was productive. Abby got her PICC line out, I made a lot of phone calls to insurance to work on her rehab placement, she enjoyed music therapy,
The front view. The straight rods are the new Shillas.
She worked really hard in PT today and did lots of sitting to standing and walking. Walking is still very hard and she requires a walker. She is unable to do more than a few independent steps at this point, and standing unassisted for more than a few seconds is also very challenging. We are also addressing her right foot being turned out and dragging a little. My hope is the inpatient rehab can get her back to as close to baseline as possible, but we will see how it goes. I've learned to just take it one day at a time.
The big news of the day came this evening when I got a call from Kennedy Krieger saying they had a bed for us! We will move there on Friday by ambulance, if all goes well. We are thrilled to start the rehab process and get closer to home. Matt is coming tomorrow evening to pack up and move everything to KKI, since it can't go on the ambulance. Abby is thrilled that her roommate has a service dog that she will be allowed to play with in the room! (They told us to make sure she is ok with dogs!). I am certain this will make the stay more bearable. Now, if only we could pass Chloe for a service dog....
Thanks for your prayers and well-wishes. Every day gets a little bit better.