Skip to main content

I Want My Girl Back

Today was not a good day.  Abby's having some concerning neurological issues.  While I was told many times that it was all just withdrawal, today they decided maybe it wasn't.  We met with lots of doctors today, including the neurology team.  They were concerned enough to want to check for a stroke or seizures, so they did a ct scan and an eeg.  The ct came back ok but we don't know about the eeg.  

I miss my girl.  I think she's in there, but she seems very far away.  She stares into space, won't usually respond to us, hasn't said anything or really tried to communicate much at all (we have been trying a lot of methods!!), has very tight arms, tremors often, and moves her fingers constantly.  Every movement is very slow and deliberate--she sometimes looks at her hands like she can't figure out why they aren't working.

And needless to say, I am a wreck.  Matt came up when the doctors started being concerned today, but he went home a little while ago.  I just keep looking at old pictures and videos on my phone of what Abby was...and just praying we get her back....

Please pray for her and for us.  She is so brave and is working so hard.  I just want my girl back!

Comments

Anonymous said…
Our prayers for Abby and the whole family.
RicKim said…
We are praying right now and will continue to do so!!!
Mary Lou said…
Julie....
"I just keep looking at old pictures and videos on my phone of what Abby was...and just praying we get her back...."
A stroke or seizures?! Oh Lord.... Here's to hoping and praying against either ailment!! Especially.... Especially the stroke!! :-(
Hugs, Friend!!
Love you later, Raelyn
Pol said…
Praying for Abby, for you and your family.
Anonymous said…
Light, strength, and love from afar
Sandy said…
Praying for Abby, you, & your entire family. God is awesome & mighty! He has all of you in the palm of his hands. Love you

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi

The Potty Man

Caleb LOVES to go potty! I have never heard a potty training story like this one....Caleb tells us when he needs to go, we take his diaper off, and he goes! Now, is it perfect? No, not at all! We aren't trying to potty train at at all, but we figure every time he goes is one less diaper we have to change! The only time we consistantly put him on the potty is when we give him a bath (he always pees in the tub, so we know he needs to go!) He almost always goes on the potty now instead of the tub though. When he's not "really" going potty, he's pretending to go potty! He's such a funny kid!

Lego Party: Favors

I'm a little slow in posting the Lego Party pictures, but I think I have a few excuses I could use.  At any rate, I wanted to share what I did for the party!  It will take a few posts, so stay with me.  I'll start with how I did the favors. These are the goody bags I made.  I just bought solid colored gift bags and matched scrapbook paper to each bag.  Then I punched circles and attached them with the 3D foam tape so that the circles were raised. I used the keychain (explained below) as a name tag on the outside. These are Duplo blocks.  I put a round magnet on the back and...voila!  A magnet!  (note:  hot glue doesn't work so well...I ended up reglueing them with my apoxy because the magnets fell off.) I made crayons using Lego man crayons.  Yes, I know this guy has lost half of his leg.  The others were already packaged and I didn't want to open one up just to get a picture.  I used a Lego mold  to make the crayons.  Caleb put small pieces of crayon in each m