Wednesday, November 12, 2014

Movin' on Up!

Thank you for all of your concern yesterday!!!!  They finally figured out a cocktail that controlled both the pain and the vomiting...and I've written it all down for the next time!!  She is tolerating pedialite now and we will start feeds later today.

Abby hadn't gotten sick since last evening, but she has also only slept when the Valium forces her to--so about 1.5 hours every 4 hours.  Otherwise, she's been staring into space.  :(

Thankfully, she had a great OT session today.  She stood for about 20 minutes with just a little support, peeled stickers and reached up to put them on a piece of paper, and colored!  We were pleased with her progress.  


She even attempted to write her name, which is no easy task when you have tremors!

I've been working with her a lot on signing today.  I'm using either yes/no or stay/go to help her communicate, because those signs require limited movements.  Fine motor is not easy right now with the withdrawal, but she is starting to communicate.  There is no chance she's going to try to talk right now!  Strangely, she isn't swallowing at all and is drooling to the point that she needs a bib.  Plastics is coming "soon" (hospital time!) to check that out.  

As soon as they do, we are headed to the floor!  Everything is packed up and ready to go.  Now that her vomiting has stopped, we feel comfortable with going. I am definitely ready for a little more autonomy, movement, and sleep on the floor! :). They also have nicer playrooms because kids are out of bed more.

We are SO thankful to the PICU staff for their wonderful care!  They have been phenomenal--everyone from the nurses to the critical care doctors to the pain team to the nurse practice antes to the desk staff!  We are so grateful to them and brought a yummy Whole Foods lunch for everybody today to show our appreciation.  They seemed very excited! :)

1 comment:

Raelyn said...

Julie....
"They finally figured out a cocktail that controlled both the pain and the vomiting!! She is tolerating pedialite now and we will start feeds later today." Thanks be to God!! ;-D
"She has also only slept when the Valium forces her to--so about 1.5 hours every 4 hours. Otherwise, she's been staring into space. Strangely, she isn't swallowing at all and is drooling to the point that she needs a bib." Poor baby!! :-(
"She had a great OT session today. She stood for about 20 minutes with just a little support, peeled stickers and reached up to put them on a piece of paper, and colored! We were pleased with her progress." Good job, Abby!! ;-D
Love you later, Raelyn