Skip to main content

Late Night Update

Abby's CO2 levels have stabilized.  Thanks for your prayers--they are working!!  They still aren't where they should be, but they are better.  The doctors have ruled out several things and now believe it is a side effect of some of the medicines she is on.  They are hopeful that all of that will even out once the sedation is off and the tube is gone.

Her left lung is still not as full as they would like it to be, but she tolerated a lot of chest therapy today and has been positioned so that the lung can expand well, so hopefully that will help.  X-rays are taken at 4 a.m. (Oh yay!!), so we should find out tomorrow morning.  

Again, thank you for all of your prayers and support.  It encourages me so much to read your notes.  Thank you all SO much for loving our family!!!!

I am SO looking forward to having all of my little family in the same spot tomorrow.  We have missed the boys! Caleb won't get to see Abby, but at least I can spend a little time with him.  And then Matt will be up here for a few days....I am really looking forward to having him here!  

Never discount how tough a hospitalization can be on a family.  It's not easy.  While we all know our roles and how important each one is, no one is truly happy until everyone is together again!

Comments

Mary Lou said…
Julie....
"Never discount how tough a hospitalization can be on a family. It's not easy. While we all know our roles and how important each one is, no one is truly happy until everyone is together again!" I know.... When I was a failure to thrive baby with craniosynostosis and congenital diaphragmatic hernia? My parents also had their then two-year old son. {Who stayed at our Grandparents house!!} It killed Mom emotionally because she could not be with both of her babies at once. So I get it. Truly. I do. Thanks be to God that Abby's CO2 levels have stabilized!! ;-D
Love you later, Raelyn

Dottie said…
I'm just one of your blog readers. Have never commented before but want you to know I am praying for your family.
Unknown said…
Praying for healing everyday. Can't wait until you are home.

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it ...

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows m...