Sunday, November 23, 2014

Slow Going

It was a slow weekend here at The Mount.  The playroom was only open for 2 hours each day and there were no other activities available.  I had some toys with me, but not enough to keep Abby occupied for 2 full days!  I've attempted a lot of origami, although I've determined I'm not good at it. Abby likes it anyway!



She quickly grew bored of the same old stuff!  When that happens, she tends to make her own fun.  That inevitably involves either a mess or breaking something!



Thankfully, my cousin and his son came for a visit yesterday!  Jacob is great with Abby and pretty much did whatever she wanted to do.  Jacob also brought a Frozen paint set, which was a huge hit with Abs!



Abby has made friends with the little girl next door.  She has a lot of physical and cognitive challenges with no one to visit her, so I think she really enjoyed playing with Abby.  She pretty much cries all of the time, except when she is playing with us.  We think she even tried to say Abby's name!  Abby loves her too and has big plans to do manicures with her when Matt brings the nail polish up!  :)

A lot of the kids here don't really have visitors and just lie in bed watching tv all day.  It makes me so sad to see them when they should be out and about doing something!  The nurses try, but they have 4 patients each.  They can't entertain kids all day!  A nurse doesn't take the place of a parent.  I know everyone's circumstance is different, but I am going to be right by my girl's side.  As long as she is in the hospital, I will be too.  

My mom, grandmother, aunt, and uncle visited today, which was a great distraction from the boredom!  Mom came with her magical suitcase of fun, and Abby eagerly played with just about everything in it!  She left a few things to hopefully entertain her when we have downtime.



I expect that this week will be at a much quicker pace with all of the therapies Abby will have.  She will get OT, PT, and speech, as well as lots and lots of feeding therapy.  The Child life Specialists will be here more, so we can go to the playroom and participate in activities there.  I'm guessing they will probably have lots of Thanksgiving crafts to do this week.

We had hoped to maybe get a day pass to go home for Thanksgiving, but it doesn't look like that will happen.  Abby is still on TPN 24/7 and we aren't trained.  So, we will enjoy Thanksgiving as a little family of 4 here at the hospital.  Volunteers make dinner for the families, and I'm sure we will get lots of yummy leftovers from my family too.  It's being together that matters!  Choosing joy!

1 comment:

Raelyn said...

Julie....
But slow weekends are a good thing, right?! No coding.... Abby is walking and talking.... Her hand tremors are gone.... Just a little perspective for you!! ;)
"Abby has made friends with the little girl next door. She has a lot of physical and cognitive challenges with no one to visit her, so I think she really enjoyed playing with Abby. She pretty much cries all of the time, except when she is playing with us. We think she even tried to say Abby's name! Abby loves her too and has big plans to do manicures with her when Matt brings the nail polish up!" Awwww.... ;-D
"A lot of the kids here don't really have visitors and just lie in bed watching tv all day. It makes me so sad to see them when they should be out and about doing something! The nurses try, but they have 4 patients each. They can't entertain kids all day! A nurse doesn't take the place of a parent. I know everyone's circumstance is different, but I am going to be right by my girl's side. As long as she is in the hospital, I will be too." That just breaks my heart!! You are a good Momma.... I do mean that!! ;)
Love you later, Raelyn