Florida 2014: Dreams Do Come True!

Today is Abby's surgery. Instead of posting something emotional and worried, I wanted to share a few pictures of her getting a dream come true!

Abby wanted to meet Elsa and Anna SOOOOO badly. We just couldn't justify standing in the rumored 4 or 5 hour lines for one of only two days at Disney World, so we prepared her that it was not going to happen. She would see them in the parade and yell hi!

Well, God bless the Disability Access Service Card. It was worth it just for this one moment. We were able to sign up to see them and just come back at the noted time. Glorious!!! We didn't tell the girls until we were in the hallway waiting to go in, just in case it didn't happen. It just seemed too good to be true! Their faces were priceless when we told them!

Walking into the room to meet Anna and Elsa, Abby just lit up. It was so sweet, and I will admit getting a little teary-eyed watching her in awe of her favorite characters.

What a wonderful, beautiful memory. I will treasure it forever!

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Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...

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Life as a Leach

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