Skip to main content

8:15 update

Abby is pretty sick from the anesthesia and hasn't been able to keep anything down yet.  This was surgery #8 and she has never vomited from anesthesia before, so this is a new and unwelcomed development.  She has been pretty miserable!  For now, she is on a clear liquid diet.  

She had lots of visitors yesterday. Caleb, the Bevards, Nina and Paw Paw, and Aunt Judy all came to see her.  Abby was pretty sleepy, but we did get a few half smiles from her.  

She went to the picu from the OR, but was sent to the floor because she was doing so well.  There definition of "doing well" is different than mine, but it was good to get on the floor where they don't have to do vitals every hour around the clock.  

Until about 2:00 am, Abby alternated between throwing up, desating, and being in pain.  We need her to take deep breaths to keep her oxygen levels up, but doing that hurts.  I sit her up to make it easier, but that makes her throw up.  She was just miserable and I couldn't help her.  It was so sad.  She also needed to pee and hadn't, and they were threatening a Foley catheter.  Although the nurse was reluctant to do the bedside commode instead of the bed pan because every little movement made her throw up, I took the opportunity to try right after she emptied her stomach.  I figured that would be the best time to see if she could go.  I was right!  She went right away, and then was able to sleep pretty well from 2-6.

I am trying to convince them to let me give her some crackers to see if I can get her to keep something down.  I know that when I'm sick, that is better to me than clear liquids.  I'm holding off on ordering her breakfast in hopes that I can get her something of substance!

The doctors haven't come to round yet.  Thankfully, Abby's pain seems to be managed right now and her incisions look good.  

A sweet doctor friend of ours from Abby's nicu days reminded me that this is all normal and we just need to give it a little time.  I was so thankful for her wisdom!!  Thank you for continuing to pray for Abby.  Although she didn't have the veptr implant yesterday, her ribs did take an awful lot of trauma and will take a while to heal.

Comments

Mary Lou said…
Julie....
I have not been commenting on people's Blogs lately, as I've enjoyed myself quite the busy Summer. However. I just wanted to let you know that I've been reading each and every update on Abby!! They were unable to implant the VEPTR?! How discouraging that must have been for you.... Hugs!! Prayers!! ;)
Love you later, Raelyn

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it ...

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows m...