Skip to main content

You Might Have Home Nursing If...



You take another adult to every doctors' appointment your child has and are frequently asked if said adult is your husband's mother because you look nothing alike.


You've ever been asked if the other adult with you at a doctor's appointment is your child's "Other Mom" because she's not wearing a nursing uniform.

You no longer have a parking spot in your own driveway and have to play musical cars with someone you have told 100 times where to park so that you can leave for the job you're not allowed to be ten minutes late to everyday!

You spend your so called free time watching nanny cams making sure the well-paid adult is sleeping or doing something that you don't approve of.

You had to get it written in the plan of care for the night nurse NOT to wake your child up to change her diaper.

You make a checklist of things to be done and have the RN sign off on it like a reward chart for a 2 year old.

You hide your favorite sodas because they're apparently your nurse's favorite too.

Your child's doctor doesn't look at you when he is asking questions.

You know to stack your dishes that couldn't fit in the dishwasher so that you don't hear clinging or full-blasted water at 3:30 a.m.

You feel like you have to leave the house so that you can stay qualified for nursing.

The nurses lie about things and you know they are, or tell two different things to each parent.

A nurse comes to work sick and tells you that YOU can just take care of your child and she will just sit there--because she really needs the money!

You have a permanent bed next to the kid's bed because you can never get fully staffed.

You have someone who will always tell you what you're doing wrong with your child and how to do it right.

Your other child asks for 24 hour nursing when he needed surgery.

You have a best friend that can actually take care of your child!

Your non-trached kid wants the nurse to babysit them.

You spend your time talking about nursing to your online trach friends while you're waiting for the night nurse to show up.

You dread a coming storm because you know that means your nurse won't come.

When you go to use an item only to find it broken or missing and "no one knows" how it happened.

You hate the 4th of July because your only night nurse goes on vacation for two weeks.

You have to set an alarm in the morning to go sign out the nurse instead of just letting your child wake you up when she wakes up.

A nurse quits because you say you really don't want her to be running her real estate business from your home.

You get "hate" email for having your doctor write an order for "common sense" because the agency told one nurse they would fire him for cleaning dishes he used overnight.

Your best friend is now a nurse.

One of your nurses gets passively aggressively mad at your fabulous room design because she doesn't like suctioning from the right side.

You fire a nurse for knitting instead of actually looking at your child.

Mandatory drug tests come up and three nurses suddenly quit at once.

All three of your regular nurses take a vacation the same week.

Your night nurse calls out and non-trach friends don't understand the big deal.

You instruct your medical director at Medicaid on the definition of medical necessity.

You wonder if nurses eat toilet paper!

Comments

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it ...

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows m...