Skip to main content

Eating Updates

Image
By
Abby is eating a lot more by mouth now.  In fact, she ate the equivalent of a gtube feed (180 calories) TWICE yesterday!!  I was so proud of her.  We've been working really hard at it, and have been striving toward a goal of 2 ounces of food a meal.  (That's 2 ounces of majorly beefed-up, high calorie food!)

Our first feeding therapy is on Tuesday, and I am really excited!  I'm hoping that they will cut a feed so that Abby can be hungrier during the day and eat more by mouth.  Of course, I don't want her to lose weight either, but our weekly therapy will be keeping close tabs on her weight.  I think this feeding therapy is a big step in the right direction, because right now Abby eats, either by mouth or by gtube, pretty much all day long.  She's never hungry!  I'm excited to hear what they have to say, and am especially looking forward to Abby going under the care of a GI who specializes in feeding therapy.  He will be the one "in charge" of her feeds, so I'm hoping he will be aggressive in getting Abby to eat by mouth.

Boring post...sorry!  I'm having a little bit of writer's block, but I'm working on a great collaboration "You Might Be _____ If..." post that I think you're going to love!  Vague?  Perhaps!  Look for it soon though!  :)
Labels:

Comments

Post a Comment

Popular posts from this blog

Cerebrocostomandibular Syndrome

By
If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it ...
10 comments
Read more

Bath Time Photos!!

By
As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)
Post a Comment
Read more

Imagination Movers Photo Recap

By
Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows m...
13 comments
Read more