Saturday, April 25, 2015


Abby was allowed to sprint off of the cpap for an hour!  She did really well, which means they will increase the time next time.  Typically, they double the amount of time for each sprint:  1 hour, 2 hours, 4 hours, 8 hours, 16 hours, and then off.  Sleeping will most likely be the last to be weaned.  As long as Abby needs cpap, we will be in the PICU.  

We are also working on increasing the volume of the pedialyte to get to the amount we typically give her (65 mls an hour).  

She's been much more awake today, and has started to play with toys a bit.  We all enjoyed a visit from our pastor Dario, who was incredibly sweet to drive all the way here!! He brought Abby some pretty cool toys that she loved!

The physical therapist got Abby to sit up again today.  She is more alert now, so we are able to get her sitting without a therapist. At this point, she can sit unassisted for 3-4 minutes.  

This surgery completely changed her anatomy, so she has to relearn everything--starting with how to sit upon her own.  We are hopeful that she will be able to walk at least short distances with a walker by the time we come home.  We knew all of this going into the surgery, so we are prepared for a long recovery.  I'm just not sure she was!

Like I keep telling Abs, each day is getting a little bit better!

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