Because He lives, I can face tomorrow...even if tomorrow is looking really, really scary.

Today was a little trial run for tomorrow! Abby got her picc line and it went perfectly. They were able to intubated the regular way with no issues...praise God! Our difficult airway days are a thing of the past, I hope! That jaw surgery was no joke, but it worked!

We were supposed to stay at the hospital tonight, but Abby did so well that they saw no reason for it. She was sooooo happy when she woke up and I told her we could go back to rmh! She enjoyed playing with her friends tonight. There are lots of kids her age here right now, which always makes it more fun. We also met another veptr family, who is wonderful! I've learned a lot from them.

Tomorrow is the big day. We have to be there at 7 am, and surgery should start at 8:30. She went in pretty late today, but I'm hoping that since she is the first surgery, she will be on time. I will update the blog as regularly as I can, but sometimes it might be a while until we hear something.

Thank you for all of your prayers for my sweet girl! She has loved the purple pictures already starting to roll in. We would be honored if you would post a picture of you (or your pets!) wearing purple! Hash tag it #purpleforabby so we can find it easily later! because she likes to look at them again and again during her recovery!

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Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head. It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!! (Note the Lysol wipes in that last picture. They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun! They played lots of their own music, with some classic rock mixed in for the adults. There were also quite a few jokes and references to Baltimore, which was kind of fun. The whole night centered around this robot named Rock-o-Matic, or "Rocko." This is Mover Scott, and he wears Wobble Goggles that help him see new ideas. Caleb and Abby have a pair of goggles too. :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap. The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers Caleb did his share of singing and dancing too. He knows m...

Life as a Leach

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