Just a Little Bump

As luck would have it, Abby seems to have gotten an upper respiratory infection that didn't show itself until yesterday evening. She started out with lots of drainage from her nose, but by bedtime, she was absolutely miserable. She tossed and turned most of the night, sleeping only for short amounts of time and crying whenever she was awake. Thankfully, her oxygen levels stayed perfect, so there was no reason to make any calls last night.

Abby seemed even more miserable this morning and had a decent fever. I called our amazing pediatrician, who took the time on his day off to meet us at the office so that he could see her. He really goes above and beyond for us! After checking Abs out, he felt like she probably had a virus that lots of kids have been getting recently. But since she just had her trach removed, he went ahead and put her on an antibiotic to kill whatever might be floating around in there. Thank you, Dr. S! You are so awesome!!

We've learned that packing a bag for the hospital in these sorts of situations ensures that we don't have to go to the hospital! So, pack we did!!! :)

After two doses of antibiotics, Abby is sleeping much more peacefully and her saturation levels are continuing to be great! We're hoping that the worst is behind us now as we deal with her first cold post-trach!

In other news, Abby's trach hole has officially closed up! There's no turning back now! :)

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Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head. It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!! (Note the Lysol wipes in that last picture. They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun! They played lots of their own music, with some classic rock mixed in for the adults. There were also quite a few jokes and references to Baltimore, which was kind of fun. The whole night centered around this robot named Rock-o-Matic, or "Rocko." This is Mover Scott, and he wears Wobble Goggles that help him see new ideas. Caleb and Abby have a pair of goggles too. :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap. The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers Caleb did his share of singing and dancing too. He knows m...

Life as a Leach

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