Skip to main content

Post op Day 1

Image
By
Matt and Caleb drove up this morning, after hitting lots of beach traffic.  Abby was thrilled to see them!  She isn't allowed to leave her room because of the wound vac, but I have been reading to her a lot and we have been coloring.  Matt brought her wheelchair up and she sat in that for several hours, which is always better for her lungs and back than sitting in the bed.

She has needed a fair amount of bipap during the day due to high respiratory rates consistently in the 70s and even in the 80s a few times.  Sadly, that may mean she will have to go to the pulmonary floor again instead of our beloved surgical floor.  Everyone on the pulm floor is super sweet!  Abby just missed all of her surg nurse friends.  The PICU doctor wanted Abby to stay there one more night before moving her, to monitor the bipap needs a bit more.  We will see what they say tomorrow.

Otherwise, we are just hanging out until we get the results on Monday.  It's kind of good that the waiting period happened over a weekend when not as much can get done anyway. 

Tonight I'm at RMH with my favorite little boy.  We played some air hockey, listened to music, watched part of a movie, and played on the computer.  We also brainstormed some ideas for our staycation.  :). 
Labels:

Comments

Post a Comment

Popular posts from this blog

Cerebrocostomandibular Syndrome

By
If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it ...
10 comments
Read more

Bath Time Photos!!

By
As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)
Post a Comment
Read more

Imagination Movers Photo Recap

By
Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows m...
13 comments
Read more