Monday, July 3, 2017

An πŸ™„ kind of day

I've lost count of how many times I've used the πŸ™„ emoji in my texts to family today.  It's just been that kind of day.  

Things started out on a happy note.  We were told at 10 am that Abby would move to the Pulmonology floor today.  Yay!  Progress!  It all went downhill from there...

At about the same time, I noticed a custodian dress in an isolation gown and mask to gather our trash. I checked for the sign on the door and found out that Abby's roommate had been put on precautions for a respiratory illness!!!!! πŸ™„  Even if you don't know a lot about medical things, you probably understand that putting a child with 15% lung capacity with a baby with a contagious illness is a BIG no-no.  I went straight to the charge nurse.  I was polite, but firm.  She "rushed" the baby's transfer to a different floor, which meant it took about 5 more hours. πŸ™„ I was a nervous wreck the entire time, impulsively wiping surfaces and using hand sanitizer.  All I can do is pray that Abby won't catch anything.

The baby finally left, and we finally foundout at  4 pm that we had a room on the 8th floor....but they brought her a crib.  πŸ™„She hasn't been in a crib in 5 years.  Turns out, beds are a hot commodity there.  And they apparently can't take beds from other floors, so they couldn't take Abby. Crazy.  πŸ™„

Plan B:  Abby will go to the 4th floor.  She was thrilled to go with all of her old friends, but we are STILL waiting and it's going on 9 pm.  πŸ™„. Our stuff is completely packed up.  I reluctantly unpacked her bipap to hook her up and put her to bed.  πŸ™„

There was much discussion about what antibiotic to give Abby.  Plastics wanted to keep her on vancomycin because this has all been such an ordeal.  The PICU team said what grew is on everyone's skin and she shouldn't be treated at all.  πŸ™„. Infectious disease fell somewhere in the middle. I agree with Plastics--let's kill this once and for all.  

Everyone finally came to an agreement that a different, but still very strong, antibiotic that can be given orally is the best choice.  It comes with its own concerning side effects, which I have voiced.  We will keep a close eye on her.  

In my non-hospital life....someone apparently backed into our parked van the other day when we were at the zoo.  πŸ™„. We didn't notice anything (it's almost 8 years old, so it had a few scratches already!), but all of the sudden the back hatch wouldn't open.  πŸ™„. When you have a kid in a wheelchair and lots of suitcases, this is a bit of an issue!  

Matt took it today first to the dealership, where he was told they would have to destroy the entire hatch to get in there.  πŸ™„. AND, there's nothing wrong with the air conditioning that we have had problems with for a year now (we have taken it 3 times and they keep saying it's fine because it works when they drive it!).  πŸ™„

He went to an autobody shop this afternoon, where the mechanic was the one who noticed we had been hit and the hatch was jammed.  Thankfully, it doesn't appear that the entire hatch will need to be replaced, keeping the price fairly reasonable in the world of autobody repair!  It's frustrating that some dirtbag would back into a vehicle and not leave a note!  πŸ™„

Like I said...lots of πŸ™„ moments today.  Tomorrow will be a better day, where we will once again make 🍹out of πŸ‹.  

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