Skip to main content

Hi-Ho, Hi-Ho...

Image
By
...it's off to feeding therapy we go!

It is easy to groan and complain that I have to drive two hours for all of Abby's feeding therapy appointments.  But I've met so many families at RMH that have traveled across the country--or even from as far as Malaysia!!--to seek treatment, that I am thankful that I only have to go two hours! 

Today will hopefully be especially productive, since we will be meeting with a behavioral psychologist who specializes in feeding disorders.  I'm hoping that she will be able to give me some good ideas on how to deal with some of the behaviors we've been seeing...namely, pocketing.

The pocketing is a real issue because she will literally keep it in her mouth for hours.  She has no problem falling asleep with it, and she's turned purple from choking on something that I didn't realize was still in her mouth.

We've tried lots and lots of different strategies, but none of them seem to be helping.  So, I'm looking forward to hearing some new ideas from the psychologist!
Labels:

Comments

Mary Lou said…
Julie....
Hey!! You just put the "Snow White" song in my head!! Hee, hee, hee.... ;)
I do hope that this appointment is successful!! ;-D
--Raelyn
March 19, 2013 at 12:30 PM
Post a Comment

Popular posts from this blog

Cerebrocostomandibular Syndrome

By
If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it ...
10 comments
Read more

Bath Time Photos!!

By
As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head.  It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!!  (Note the Lysol wipes in that last picture.  They are NEVER far away!)
Post a Comment
Read more

Imagination Movers Photo Recap

By
Seriously, The Imagination Movers were so much fun!  They played lots of their own music, with some classic rock mixed in for the adults.  There were also quite a few jokes and references to Baltimore, which was kind of fun.   The whole night centered around this robot named Rock-o-Matic, or "Rocko."   This is Mover Scott, and he wears Wobble Goggles that help him see new ideas.  Caleb and Abby have a pair of goggles too.  :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap.  The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers  Caleb did his share of singing and dancing too.  He knows m...
13 comments
Read more