There's a whole lot going on in my head right now, but I wanted to share with you an article that was written by the sister of a trach mom. Her nephew has CHARGE Syndrome, which is pretty rough as far as syndromes go. She shares her perspective on the way people respond to her nephew.
I could go into so much about this, but I'm simply going to ask you to think about your staring, your questions, your facial expressions, your misconceptions. Remember that the special needs child you're gawking at is a person and the family with him or her has unconditional love for that child. Remember that the way you treat that special needs child can either make the child and his or her family feel accepted or isolated. Remember that everyone just wants to feel loved. Remember that God made everyone perfect in His eyes. Remember that your harsh comments and attitudes are hurtful. Remember that somewhere, a mother is crying late at night because she just wants others to see her little girl the way she sees her.