Thursday, October 28, 2010

Rollercoaster Ride

Meet Abby

We are ready to introduce you to our beautiful girl, Abigail Elizabeth Joy Leach! There are some pictures in the photo album for you to enjoy. :)

FYI: The orange tube in her nose is her trumpet, which helps her breathe and keeps her tongue out of the way. The orange tube in her mouth is her feeding tube, and the black cord in her mouth is a safety feature in case she has real trouble breathing. There's the tour. :)

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Wednesday, October 27, 2010 5:50 PM, EDT

Roller Coaster Ride

Abby had a pretty good morning today. Matt and I stepped out while the doctors were rounding on the other patients and went to the waiting room for a while. I walked back to her room to deliver some milk before we went to get some lunch, and was hit with some news:

"We're heading to the OR. Abby needs to be intubated."

I ran to get Matt, who was in the waiting room, and we heard the whole report. After we left, Abby really started having a lot of trouble breathing and it was determined that not having a secure airway was really putting her in danger.

They took her back, but unfortunately were unable to intubate. Babies with small airways (and hers is really small) are just very difficult to intubate--and they weren't even attempting oral intubation.

Abby now has a secure airway through a trach. While this is much more invasive than we were hoping, it does have its positives. Now that the airway isn't as much of a concern, we can move forward with other issues that need to be addressed. Because she doesn't have to struggle so hard to breathe, she won't be burning so many calories and will be able to grow!! Plus, we are able to see her full face for the first time ever. The trumpet and tape are gone now and we can fully admire her beautiful face! I spent a lot of time stroking her this afternoon. :) She has my nose just like Caleb! Matt's still clinging to the brown eyes as his only hope for her looking like him...

While today didn't go quite the way we wanted it to, we still know that God has a plan in all of this. We have already seen His hand in so many things: the fact that I feel wonderful and am able to fully focus on Abby instead of my own pain, the compassion we've seen in so many of the nurses and doctors during this process, the conversations we have been able to have about our hope with so many staff members and others in the hospital (I have shared about God more in the last month and a half than I ever have!), the love we have received from all of you, and the way He has been teaching us to cling to each other and Him for support. Matt and I have never been closer.

So yes, while there have been lots of tears these last 5 days, we are still choosing joy...Abby Joy, to be exact! :) Love you all!!!

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Thursday, October 28, 2010 10:23 PM, EDT

An Angel Named Megan

We have had wonderful experiences with all of our nurses so far, but one has an extra special place in our hearts already. Her name is Megan, and she is amazing.

From the first time Megan had Abby, she treated her as a person and not just as a patient. As a mom who was just trying to wrap my brain around all of the craziness, I really appreciated this. It's hard when they are constantly poking and prodding your baby, but Megan really was gentle and loving toward Abby.

Since then, we've had Megan several more times as Abby's night nurse. We've been able to share with her more and she was there for me on one particularly bad night. She couldn't do anything, but she was there and she listened and that was enough.

Last night, Megan had a training class before she got her assignment and wasn't able to get Abby. She popped in to see her, found out about her bad day and the trach, and took the time to write us the sweetest, most compassionate page-long note. We found it taped to her bedside this morning and were so moved by her kindness. She didn't have to say anything, but she knew that this was difficult for us and wanted to let us know that she cared.

What an awesome woman!!

Megan is also following our journey on Caring Megan, Matt and I just wanted to say thanks. That's not nearly enough considering how wonderful you have been, but we really do appreciate your compassion. We are so thankful for you!!

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