Sunday, May 28, 2017

Post op day 6

Woo hoo for another good day!  Abby was able to be off the bipap for 3 straight hours and did great!  She did another 2 hour sprint before bed tonight.  This one wasn't as smooth because her ribs were really hurting and it took a while to get that under control, but I was able to distract her some by reading a few chapters in a new book.

 
She still has a ways to go before she can get out of the PICU, but we are hoping that will happen in the next few days.  Today's success was very encouraging!

We did find out that Abby will be on antibiotics for a very long time:  for as long as she has hardware.  Since the veptrs are needed in order to hold her rib cage open and expanded, she will always have hardware.  This would mean she will have antibiotics for forever.  They have very good reasons for this, so we trust them.  It wouldn't be my first choice, but it's the best choice for sure.  

Caleb and I enjoyed some wonderful time together today at the Franklin Institute.  He loves science and learning how things work, and we were able to go totally at his speed.  He has such an inquisitive mind!!  It was good to hang out with him.

 

 

Matt and Caleb will be leaving tomorrow and I'm going to miss them so much!  I needed Matt here this week.  It's been tough.

But she's doing better and I'm glad she's well enough that Matt can be comfortable going home!

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