Get Your Purple Ready!

We've got our purple picked out!! How about you?? Are you ready to go #purpleforabby on Tuesday??

For those of you who are newer around here, every surgery day lots of our family, friends, and even people we don't know personally wear purple in support for Abby and take selfies to post on Facebook. Purple is her favorite color, and she absolutely LOVES seeing pictures of people dressed up in purple to show their love to her. Her favorites are the animals wearing purple! Those often bring the first smiles we see post-op! We will seriously look at all of the pictures multiple times while in the hospital. The more creative, the better! They seriously bring her SO much joy, which is what it's all about when you go through what she has to endure.

If you post a selfie, be sure to hashtag it #purpleforabby so that it is easy for us to find it later. That way, all I have to do is search that hashtag and all of the pictures come up. If anyone asks you what the purple is about, feel free to share about our brave girl's journey, or send them to the blog. Thanks everyone!

Comments

Mary Lou said…

Julie....
Purple is--was--my Grampa's favorite color, too!! He lost his looong battle with cancer on March 19th. Whenever I see the color purple, it immediately makes me think of Grampa.... And now, my two-year old niece, "Opal", will proudly tell you.... "My favorite color purple!!" ;)
"Stay hard, stay hungry, stay alive", Raelyn

May 21, 2016 at 12:42 PM

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS. If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan. The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google. My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!! (a combination of all 3 is great too!) :) Notice that it's not to get famous and it ...

Bath Time Photos!!

As promised, here are lots of photos of Abby's first bath. Caleb was supposed to be in bed, but the bathroom is right next to his room... "I'm not too sure about this..." Once she learned how to splash, she was all smiles! Her first good hair wash! Gotta protect the trach! She really liked getting water poured on her head. It was cute! Smiley (and bubbly) for Daddy while he dried her off. All clean!! (Note the Lysol wipes in that last picture. They are NEVER far away!)

Imagination Movers Photo Recap

Seriously, The Imagination Movers were so much fun! They played lots of their own music, with some classic rock mixed in for the adults. There were also quite a few jokes and references to Baltimore, which was kind of fun. The whole night centered around this robot named Rock-o-Matic, or "Rocko." This is Mover Scott, and he wears Wobble Goggles that help him see new ideas. Caleb and Abby have a pair of goggles too. :) There are 4 main Movers that are part of the TV show, but they have 2 extra movers to play instruments and do back-up vocals in their live tour. Abby finished up her feed before the show started so that she would be free to dance! My dancing queen did NOT want to sit in my lap. The row in front of us was empty, and that is where she stood almost the entire show--dancing the night away. My Imagination Movers Caleb did his share of singing and dancing too. He knows m...

Life as a Leach

Search This Blog