Saturday, February 27, 2016

What About the Rarest of the Rare?




  • Approximately 50% of rare diseases do not have a disease specific foundation supporting or researching their rare disease.  CCMS is one of those, and I don't see that happening anytime soon!  It's just too rare.  
  • This meme pretty much sums it up!


1 comment:

Shannon said...

Hi Julie! Happy Rare Disease Day! I write for an online publication and this week my article is about rare disease and why EVERYONE should care! I even mentioned CCMS :) Please take a minute to read and share! http://theodysseyonline.com/simmons/alone-rare-together-able/303898