Tuesday, February 9, 2016


I want to share a poem that was written by another VEPTR Child.   It's fitting that this was shared tonight, since Abby found out about her next big surgery today (to put the two long rods in) and cried off and on all night.  She was so sad about the whole thing and even told me her heart was broken. :(. I liked it better when she just looked forward to visiting the playroom. 

While this boy's reason for needing veptrs is different than Abby's, the number of surgeries, the constant pain, the frequent doctors' visits, and the limitations are very much the same.


Scoliosis is the name
Surgeries and braces are the game

Doctors appointments throughout the year
Most of them brought me to tears 

Missing school which I did a lot
Was always hard but give up I did not  

Surgeries were always the scary part 
Being away from my family broke my heart

My teachers and classmates made me feel good 
Knowing what I went through showed they understood

I don't get to do what all the other kids do  
But I don't let that stop me I am a kid too

I am special my spine is made of steel 
The hard part about this is how it feels 

Scoliosis surgeries are not fun 
I am just glad I am almost done.

By: Jojo 
From: Alabama

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