I want to share a poem that was written by another VEPTR Child. It's fitting that this was shared tonight, since Abby found out about her next big surgery today (to put the two long rods in) and cried off and on all night. She was so sad about the whole thing and even told me her heart was broken. :(. I liked it better when she just looked forward to visiting the playroom.
While this boy's reason for needing veptrs is different than Abby's, the number of surgeries, the constant pain, the frequent doctors' visits, and the limitations are very much the same.
Scoliosis is the name
Surgeries and braces are the game
Doctors appointments throughout the year
Most of them brought me to tears
Missing school which I did a lot
Was always hard but give up I did not
Surgeries were always the scary part
Being away from my family broke my heart
My teachers and classmates made me feel good
Knowing what I went through showed they understood
I don't get to do what all the other kids do
But I don't let that stop me I am a kid too
I am special my spine is made of steel
The hard part about this is how it feels
Scoliosis surgeries are not fun
I am just glad I am almost done.