Skip to main content

The Aftermath

Thank you for all of the sweet comments, emails, and prayers after my last post.  This has been very emotional for me, and it's even harder that Matt hasn't been home while I deal with it.  I'm still most definitely processing our news.   I have found myself quietly apologizing to Abby each night when I put her to bed.  Not apologizing for her life, but apologizing that I am the reason that she has to go through all of this.

I've started the ball rolling for getting a chest xray.  Our insurance won't pay for it, since it's not medically necessary, so we're going through the genetic research department.  I expect that the xray would happen in the next few weeks.  It has to be done at Hopkins, so I'm hoping that I can get the xray done when we are already up there!

I'm looking forward to having my husband back.  This summer, we've pretty much been apart.  That really hit me this week, and it's been a long one!

I've been working on some lighter blog posts to even out these heavy ones.  Stay tuned!  ;)

Comments

Mary Lou said…
Julie....
I was going to "check in" on you come Saturday, if there were not any new posts. I am so glad that you are doing alright, Friend!! Such news can really pitch a woman into depression. Thus, I could not get you off of my mind or heart!! ;)
--Raelyn
Dana said…
Thinking about you. I can only imagine what you are going through, but, remember, Abby wouldn't be Abby if she was different than she is :-) Regardless of her problems, Abby is amazing, a fighter, a lover, and beautiful. Keep that in mind :-) I know I've never met you personally (though your mom was Gabby's first grade teacher this past year), but your family is always in my thoughts.

Hugs,
Dana

Popular posts from this blog

Cerebrocostomandibular Syndrome

If you happen to pick up the latest Reader's Digest, there is an article in there about Piper Breinholt , a four year old with CCMS.  If you've been around here a while, you'll remember wayyyyyy back when we first received Abby's diagnosis that I was able to speak to Piper's mom, Reagan.  The article is more about their story and not as much about the ins and outs of CCMS, but I think it's probably enough to get some people googling it and I'm hoping a few will end up here. Every once in a while, I give a blog post the title of Cerebrocostomandibular Syndrome so that it would show up in Google.  My ever-present hope is that people will stumble across my blog and 1) be encouraged by the hope we have in Christ, 2) feel a connection with someone in a similar situation as them, or 3) get excited over the miracles that have been performed in Abby's life!!  (a combination of all 3 is great too!)  :)   Notice that it's not to get famous and it never wi

The Potty Man

Caleb LOVES to go potty! I have never heard a potty training story like this one....Caleb tells us when he needs to go, we take his diaper off, and he goes! Now, is it perfect? No, not at all! We aren't trying to potty train at at all, but we figure every time he goes is one less diaper we have to change! The only time we consistantly put him on the potty is when we give him a bath (he always pees in the tub, so we know he needs to go!) He almost always goes on the potty now instead of the tub though. When he's not "really" going potty, he's pretending to go potty! He's such a funny kid!

Lego Party: Favors

I'm a little slow in posting the Lego Party pictures, but I think I have a few excuses I could use.  At any rate, I wanted to share what I did for the party!  It will take a few posts, so stay with me.  I'll start with how I did the favors. These are the goody bags I made.  I just bought solid colored gift bags and matched scrapbook paper to each bag.  Then I punched circles and attached them with the 3D foam tape so that the circles were raised. I used the keychain (explained below) as a name tag on the outside. These are Duplo blocks.  I put a round magnet on the back and...voila!  A magnet!  (note:  hot glue doesn't work so well...I ended up reglueing them with my apoxy because the magnets fell off.) I made crayons using Lego man crayons.  Yes, I know this guy has lost half of his leg.  The others were already packaged and I didn't want to open one up just to get a picture.  I used a Lego mold  to make the crayons.  Caleb put small pieces of crayon in each m