We heard back from Dr. C that he wants to do a limited spinal fusion with instrumentation to correct Abby's cervical kyphosis caused by the last veptr surgery. It was a 2-sentence email that left us with a million questions, so now we are going to CHOP on Friday (2 days from now) to have a sit-down and iron all of this out. I think driving 8 hours in one day will be worth it if we get some real answers. We emailed all our questions, but we are sure that those answers will bring about more questions...it's just easier to talk face to face and the nurse practitioner agreed.
Abby is understandably sad and downhearted, but her cousins and I went to Five-Below while she was at PT. They each picked out something to cheer her up, and it worked. :)
We would appreciate your prayers for clarity and communication as we meet with the team on Friday!